I am so sorry to hear that. 🙁 Thanks for sharing with me. My grandmother started with Vidaza, and they kept stopping the treatment to deal with the infection, so out of 7 months, she only got 2 rounds of the Vidaza. There was a medication called ‘Promacta’ the doctor tried her on, to help her produce her own blood cells, and it just seem to cause an onset of severe lower flank pain that caused her to have issues with walking. The first time, she got past that hurtle, but this time, it’s taking her a while to recover. Turns out, she had an abscess pressing against her kidney. So, they’re draining the abscess, the kidney, plus she has pneumonia, and sepsis (infection of the blood). They didn’t want to treat her with anything for the Leukemia, even after we told them about the different studies that were out there. Fortunately, we were able to transfer her to our local hospital that has a cancer institute, they’re not sounding to optimistic either, but they’re more willing to support what we want. We were able to talk one of the doctors into trying a chemo pill called ‘Hydroxeria’ on my grandmother, that brought her WBC counts down drastically, but not all the way. So, now we are kind of at a stand still until we can get her off of the vent. She’s been on for a few days-she was having trouble breathing with the pneumonia. 🙁
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