MDS is a bone marrow failure disorder
MDS is a blood cancer
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Just Diagnosed

Home Demo forums Patient Message Board Just Diagnosed

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  • #31091
    Hailee Robinson
    Participant

    My mom was just diagnosed with MDS. They say she has the early signs of it so they don’t want to do anything except keep an eye on her blood. That’s not good enough for me. What are some things we can do to make sure this does not progress? My mom is young, she is only 52.

    #31208
    Anonymous
    Inactive

    Dear Hailee, Thank you for your email with information regarding your mother’s health. I know this is a difficult situation for you and I would recommend that you take her to one of our Centers of Excellence in MDS for a second opinion. She should be very carefully assessed before undergoing any treatment. Benefits versus risk analysis should be done with any treatment.

    Following is a link to our Centers of Excellence worldwide https://www.mds-foundation.org/mds-centeres-of-excellence/. We also have a wonderful information program called the Building Blocks of Hope which we can send you via postal mail. If this is something that you would be interested in, please forward your mailing address to ahassan@mds-foundation.org. In the meantime, you can also view this video https://www.mds-foundation.org/bboh/. I hope this information helps.

    #31253
    Michael Smith
    Participant

    I need to know anything about FULL CANNIBUS EXTRACT. Has this worked for anyone. The 100% oil. It’s a black tar looking substance.

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