less than 3o years old patient

[celinka]

Hello,

i am new user here and it is my first post. My partner has MDS. He is very young, less than 30 years old.
Treatment is just beginning. Is here a person who has MDS in similar age? Maybe someone got sick as a young man and now is ok?
I am looking for a person with I could talk about MDS and treatment.
I live in Europe and I am curious whether the treatment in different countries is the same.

• This topic was modified 8 years, 12 months ago by celinka. Reason: change mistake

[Anonymous]

Hi Celinka, What part of Europe are you from? The MDS Foundation has international global patient support group contacts which can be found via this link https://www.mds-foundation.org/global-patient-support-groups/. Another resource is this link https://www.mds-foundation.org/links-to-related-organizations/ to related organizations. I hope this helps.

[Roy Youl]

Hey there Celinka
my partner is 31 and was just diagnosed with mds. Would love to talk with you. I m from srael

[celinka]

Hello Roy,
If you want – write to me your e-mail address i try reply.

[Cherelle]

I’m 34 from Australia female mother of 4, diagnosed 2012.

[Devon Grosskopf]

Diagnosed with AML with MDS at 32. I constantly hear your so young to have this disease.

[Author]

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