Welcome to the MDS Patient Message Board Post New Thread

Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

Mds misdiagnosed? Help

This topic has 1 reply, 2 voices, and was last updated 7 years, 9 months ago by haterry.

Viewing 2 posts - 1 through 2 (of 2 total)

Author

Posts
July 26, 2016 at 2:15 pm #30241

Roy Youl
Participant

Hello
I am 30 year old dagnosed wih mds a month ago following unexplained neutropenia. I went through bone marrow and the biopsy found q20del which “crowned” me officially with mds.

On July 7th i recieved neupogen to increase my neutrophils. All blood tests since were perfect! Last test yesterday was netrophils 2.8
Hemoglobin 14.4 and all the rest well.its been 3 weeks since neupogen and doctors do not understand how come all clood tests are good.

My question: possible they misdiagnosed me with mds? Possible to be healthy with q20del?. Haveyou heard of something like it? Thanks

July 27, 2016 at 12:50 pm #30253

haterry
Participant

I have definitely heard of a mis-diagnosis. But I would monitor it and get a second opinion.
Author

Posts

Viewing 2 posts - 1 through 2 (of 2 total)

Register for an account, or login to post to our message boards. Click here.

You must be logged in to reply to this topic.

Welcome to the MDS Patient Message Board Post New Thread

Mds misdiagnosed? Help

Register for an account, or login to post to our message boards. Click here.

Login

Login

Login

Search Forums

Recent Topics

CONTACT US

MEMBER OF