Welcome to the MDS Patient Message Board Post New Thread

Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

New to the journey of MDS

Tagged: cool math

This topic has 7 replies, 7 voices, and was last updated 7 years, 6 months ago by Lyn Sherer.

Viewing 8 posts - 1 through 8 (of 8 total)

Author

Posts
August 5, 2016 at 10:41 am #30341

Cindy Miller
Participant

My husband was just diagnosed with MDS two months ago and we are working at the stem cell process starting in September. Although I am a Christian and I trust God fully I don’t know what to do with the emotions that he is given me. I don’t want to burden my husband is he is going through enough and my children as well so therefore I am reaching out to anybody in the MDS community that can help. I am looking for somebody that I can share my innermost thoughts with without judgment of how I feel. Any help would be greatly appreciated thank you!
Cindy

August 5, 2016 at 11:30 am #30342

Sherry Pratt
Participant

Cindy Miller,
I too am a Christian and I have Refractory Anemia with Ringed Sideroblasts(RARS)- a type of MDS. I would love to talk with you anytime to tell you how I deal with the emotions of having an incurable disease that really alters your lifestyle in many ways and always not knowing what is coming next. Sherry Pratt – pratt8075@gmail.com

August 24, 2016 at 4:35 pm #30442

Gary Stranahan
Participant

New to the Journey of MDS – I was diagnosed with MDS in February. I would be happy to talk to you and share feelings of my children and wife. If you would like to communicate please let me know. Email address is gary_stranahan@yahoo.com

September 26, 2016 at 5:46 pm #30557

LeAnn Duke
Participant

Hi Cindy, I am a Christian age 59 and I would be happy to talk with you. I too have MDS and realize that this is an incurable disease and that we don’t know what tomorrow will bring. Please feel free to contact me at my email: Brileighsmia@yahoo.com. I can certainly understand and my husband knows the feelings you are experiencing as well with the fear of losing someone you love. I am here for you!! LeAnn Duke

September 26, 2016 at 7:21 pm #30560

rar
Participant

A transplant cured my MDS. Don’t be so pessimistic.

September 26, 2016 at 7:56 pm #30561

Cindy Miller
Participant

Amen!!! There is no place for pessimism!!!!!

October 10, 2016 at 9:17 pm #30640

jennifer elmahdy
Participant

I am 40 years old and am 142 post-transplant and I am in remission.

@cindy Miller and @rar
Where are you in your post-transplant? Did you have treatment with post-transplant vidaza?

October 17, 2016 at 10:04 am #30693

Lyn Sherer
Participant

I was diagnosed last Friday. Of more importance, I also have Pulmonary Arterial Hypertension. I have learned that it is very important to have support as a caregiver. Saying don’t be so pessimistic is easy. You need help with that on what we call the dark days. If this site does not have caregiver support, then try phassociation.org. Also the Cancer Foundation has an area for caregivers. Please seek help. My husband didn’t accept help and lost a great job trying to help me. We will never recover from that loss. Caregiving is tough, again please reach out and use the resources that are available to help.
Author

Posts