My husband was diagnosed with MDS Refractory anemia w/ excessive blasts type 2 (high risk) 3 1/2 months ago. He’s had cancer twice in the past plus liver cirrhosis and pulmonary fibrosis He is only 59. We started Vidaza right away and just finished our 3 round. We start 4th round in 2 weeks. HIs counts are all low WBC .4; HMG 8.0; PLT 20. He gets 2 units red blood transfusions about every 7-13 days and 2 units of platelets a couple times a week. Our oncologist says they have seen no improvement so far and will do one more round of vidaza and reevaluate.
What are we to expect? He is tired a lot and is on oxygen 24/7 has been for 2 1/2 years due to the lung issues, struggles with nose bleeds, but doesn’t really feel too much different than he has prior to diagnosis.
Anyone out there give me honest answers on what to expect. At diagnosis they gave us about 8 months with palliative treatment.
Thank you.