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Worried, need some help

Home Demo forums Patient Message Board Worried, need some help

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  • #26307
    krunkert
    Participant

    I’m a *healthy* 34 year old male. Problem is for the past 5 years my blood tests have been getting all sorts of weird and now they are scaring me. About 5 years ago my wbc was low (4 I think), ran some tests, found nothing and moved on. WBC has been low ever since (but stable-ish 2.6 – 4.0). Last year my platelets came back at 111. Scary part was after I looked back through my yearly records I noticed my platelets have been falling steadily since I first started getting regular cbc’s. Went through a battery of tests including a bone marrow biopsy. It came back mild hypoplasia but nothing he seemed concerned about.

    Here is the freaky part. When my blood doctor gave me the results he mentioned *possible* mds though when I asked him about it at a later apt after I researched it he said, “No, there was nothing in biopsy to indicate that.” Obviously I know there was because I didn’t just pull it out of the air to research it. Anyways, I digress. Am I worrying myself to death over nothing? He seems to think its probably a very slow moving bone disorder. He seems to think its nothing. I should note that almost everything else on my cbc is relatively normal, I’ve had probably 20 so and there have been some oddities that were like .1% outside normal range but nothing consistent. RBC is stable and normal, WBC is low but stable, platelets were falling but seemed to be stable around 105 ish for the last 6 months. I have my yearly checkup this week so it got me all concerned again.

    Has anyone seen MDS manifest like this? At this age? I know its possible but unlikely but I’m asking if there is anything else that would point me in the right direction. I should end with I have no symptoms, and am physically fit, though I could stand to build some muscle.

    Thanks for reading, I appreciate any input.

    #26369
    Anonymous
    Inactive

    Thank you for your email with information regarding health. I know this is a difficult situation for you and I would recommend that you go to one of our Centers of Excellence in MDS for a second opinion. Second opinions are pursued for many reasons: to confirm the diagnosis of MDS, to evaluate the appropriateness of the treatment plan, to consider participating in clinical trials (which may only be available at certain facilities). Following is a link to our Centers of Excellence worldwide https://www.mds-foundation.org/mds-centeres-of-excellence/. I hope this information helps. If we can be of any further assistance, please do not hesitate to contact the MDS Foundation toll-free at 800-637-0839.

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