About the Foundation
The Editor's Desk
Funding the Foundation
Patient Information
MDS Centers of Excellence
International Patient Registry
International Research Updates
Contacting the Foundation
Clinician Resources
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Links and Archive Articles
Currrent Newsletter

US Patient Liaison: Audrey Hassan • Patientliaison@mds-foundation.org • P.O. Box 353, Crosswicks, NJ 08515
Phone: 1-800-MDS-0839, outside the US only: 609-298-6746 • Fax: 1-609-298-0590
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EU Patient Liaison: Sophie WintrichSwintrich@mds-foundation.org
The Rayne Institute, Denmark Hill Campus, 123 Coldharbour Lane London SE5 9NU, UK Tel: +44 20 7733 7558

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International Patient Registry

The MDS Foundation has created the International MDS Patient Registry.

Currently, the MDS Patient Registry is only accepting patients through our designated Centers of Excellence. If you would like to become a Centers of Excellence, please contact the Foundation at address below.

A two-page data sheet will be forwarded to investigators who wish to contribute patient's names to the Registry.

The Registry will be located at the MDS Foundation's Statistical Center at the University of Rochester Cancer center. Please contact the Foundation for further information.

The MDS Foundation
P.O. BOX 353
Crosswicks, NJ 08515

Within the US Phone: 1-800-MDS-0839
Outside the US only: 1-609-298-6746
Fax: 1-609-298-0590

Click here to send an Email for a Request Data Sheet - please key in your mailing address in the e-mail message body.

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Frequently Asked Questions About MDS
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The MDS Foundation is supported by unrestricted educational grants from the sponsors shown on the left.