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The Myelodysplastic Syndromes Foundation was
established by an international group of physicians and researchers
to provide an ongoing exchange of information relating to MDS.
Until the Foundation was set up, no formal working
group had been devoted to MDS. During the past decade we have conducted
10 international symposia —in Austria,
England, the United States, Spain, Czech Republic, Sweden, France,
Japan, Italy, and Greece. The 11th International Symposium is being held
May 18-21, 2011 in Edinburgh, UK.
A major Foundation effort is our international
information network. This network provides patients with referrals
to Centers of Excellence, contact names for available clinical
trials, sharing of new research and treatment options between
physicians, and extension of educational support to both physicians
and patients.
In response to the needs expressed by patients,
families, and physicians, we have established patient advocacy
groups, research funding, and physician education.
The MDS Foundation
is a publicly supported organization, exempt from federal income
tax under section 501(C)(3) of the IRS code.
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