MDS is a bone marrow failure disorder
MDS is a blood cancer
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Upcoming 2022 Webinars for MDS Patients & Caregivers

We have planned a comprehensive series of webinars for 2022 bringing experts and the MDS community together to provide educational information, best practices, tools, and resources.

Whether you are a newly diagnosed patient, a long-term survivor, or caregiver, our webinar series will have something for you.

We will be collaborating with renowned hematology professionals who will be addressing key topics and questions you may have using language that is easy to understand in a 90-minute format that will include live Q&A opportunities for all participants.

Register now for our webinars planned for this series. Led by top thought leaders in the field, you can be assured you are getting information you can trust.

  • January 22, 2022 Focus on Understanding Clinical Trials and How to Identify the Right One for You @12 pm ET
    Speaker: Andrew M. Brunner, MD; Massachusetts General Hospital; Assistant Professor, Medicine, Harvard Medical School
    Today’s standard treatments for patients are based on previous clinical trials and it is important to think of clinical trials as a possible treatment option instead of a last resort. Novel targets and targeted agents in clinical trials showing promise in the treatment of MDS and AML will be discussed. Hear what clinical trials are all about and if they are right for you. The most promising research from the 2021 American Society of Hematology (ASH) will also be presented.
    View Webinar Q&A
  • February 12, 2022:  Optimizing Transfusion Support in MDS @ 12 pm ET
    Speaker: Lindsay R. Wilde, MD; Sidney Kimmel Cancer Center at Thomas Jefferson University Hospital, Philadelphia, PA
    This webinar will explain how transfusion support can be optimized in the treatment of myelodysplastic syndromes (MDS).  Strategic benefits and blood transfusion best practices will be discussed.
    View WebinarQ&A
  • March 26, 2022: Advances in our Understanding of the Management of MDS @12 pm ET
    Speaker: Michael Keng, MD; University of Virginia, Emily Couric Clinical Cancer Center, Charlottesville, VA
    This webinar will describe recent advances in our understanding of the management of myelodysplastic syndromes and related myeloid neoplasms, and how these advances are being translated into more effective treatments for these patients.
    View Webinar
  • May 21, 2022: Precision Medicine in MDS and AML @12 pm ET
    Speaker: Rory Shallis, MD; Yale School of Medicine, New Haven, CT
    Precision medicine can be simply defined as the identification of personalized treatment that matches patient-specific clinical and genomic characteristics. Learn about current standard treatment options, emerging treatment strategies, and the importance of genetic testing to identify mutations that may impact treatment.
    Register Now
  • June 25, 2022: Becoming a Partner in Your Care: MDS Support Group @12 pm ET
    Speaker: Sara M. Tinsley, PhD, APRN, AOCN; Moffitt Cancer Center, Tampa, FL
    Join us for a free webinar to support our patients and loved ones. This webinar will address all aspects of becoming a partner in your care. We invite you to learn more about self-care, and the physical, social, and emotional challenges that patients and caregivers face. Whether you are a patient or caregiver, you will be able to connect with others, gather ideas, learn about resources, and ask questions.
    Register Now
  • July 23, 2022: Living with Chronic Fatigue: I’m Just Not Tired @12 pm ET
    Speaker: Brandi Reeves, MD; Lineberger Comprehensive Cancer Center, UNC-Chapel Hill School of Medicine, Chapel Hill, NC
    Chronic fatigue is the most common and severe symptom in myelodysplastic syndromes (MDS) and has a strong negative association with health-related quality of life. This webinar will provide an overview of transfusion dependency in MDS, focusing on blood transfusion benefits and risks. Understanding the impact of transfusion dependence, and answers to common questions will be discussed.
    Register Now

Learn from experts about treatment therapies and strategies for Patients & Caregiver LIVING with MDS.

Thank you to Bristol-Myers Squibb, Jazz, Novartis, and Taiho for supporting these important events.

Review answers to commonly asked questions or get answers to your questions from an MDS expert