July 29, 2023: Updates from the 17th International Congress on MDS: Promising Treatment Advances @12 pm ET Speaker: Moshe Mittelman MD; Professor of Medicine and Hematology, Tel Aviv Sourasky Medical Center In this webinar, Dr. Moshe Mittelman will provide an overview of the most promising research presented at the 2023 17th International Congress on Myelodysplastic […]
April 1, 2023: Low-Risk MDS @12 pm ET Speaker: Guillermo Garcia-Manero, MD; Chief, Section of MDS, MD Anderson Cancer Center In this webinar, Dr. Garcia-Manero will highlight recent advances benefitting patients with Low-Risk MDS. REGISTER NOW
April 22, 2023: Psychological Well-Being and MDS @12 pm ET Speaker: Hermioni L. Amonoo, MD, MPP; Assistant Professor, Psychiatry, Harvard Medical School; Associate Program Director, Psychiatry, Brigham And Women’s Hospital In this webinar, Dr. Hermioni Amonoo will share her tools for taking care of your mental health and emotional well-being following a cancer diagnosis. REGISTER NOW
August 19, 2023: CHIP and CCUS, Precursors to MDS @12 pm ET Speaker: Zhuoer Xie, MD, MS; Moffitt Cancer Center, Tampa, Florida There have been marked developments in the understanding of clonal hematopoiesis based on findings of somatic mutations in genes known to be associated with MDS. This has led to newer terms to describe precursor […]
MDS Presentation Date: February 9, 2023 Time: 11 AM (Eastern Time (ET)) Speaker: Dr Dina Khalaf To register via zoom, go to: https://us06web.zoom.us/webinar/register/WN_l0q6xplcSNuw-xueSNa7Tw For more information and to register please check AAMAC’s website at Meetings & Events
Sexual Health and Intimacy in the Context of Serious Illness Date: January 24, 2023 Time: 7PM (ET) Speaker: Reanne Booker To register via zoom, go to: https://us06web.zoom.us/webinar/register/WN_raMZbXO7QxKe2A8gpTSm4g
Self-Compassion for Caregivers Date: November 22, 2022 Time: 2 pm (Eastern Time (ET)) Speaker: Patricia Williams To register via zoom, go to: https://us06web.zoom.us/webinar/register/WN_ClSJme0WRJu4USZmJqUktg
MDS – New and Emerging Treatments Date: Monday October 17, 2022 Time: 1PM (CT) | 2PM (ET) Speaker: Brett Houston, MD, PhD To register via zoom, go to: https://us06web.zoom.us/webinar/register/WN_LT66MmtnRC2b5ChNNHydvQ
Join us on September 30th from 12:00 – 1:00 pm ET for the Cancer Support Community Webinar! We have partnered with Cancer Support Community to elevate the voices of MDS patients and caregivers through the Cancer Experience Registry (CER). The CER is an online research study with the goal of improving support services, enhancing cancer […]
Blood Safety in Canada Please note: This will be a live webinar only. It will not be recorded. Date: May 31, 2022 Time: 6 pm to 7:30 pm (ET) Speaker: Dr Aditi Khandelwal Objectives: • Safety of blood • Emerging pathogens • Current testing • Post donation monitoring To register via zoom, go to: https://us06web.zoom.us/webinar/register/WN_CbzwHtvkT5iO0XNk2kX2fg
Claim CME Credits* *CME/CE credits only available to participants that attended the LIVE session on Friday, December 10, 2021. Webinars Click the links below to view our presentations: About the MDS Foundation Stephen Nimer, MD – Sylvester Cancer Center, Miami, FL Presentation While the WHO classification of MDS has helped our patients, we […]
Saturday, June 25, 2022: Becoming a Partner in Your Care: MDS Support Group @12 pm ET Sara M. Tinsley, PhD, APRN, AOCN; Moffitt Cancer Center, Tampa, FL Join us for a free webinar to support our patients and loved ones. This webinar will address all aspects of becoming a partner in your care. We invite […]
Saturday, May 21, 2022: Precision Medicine in MDS and AML @12 pm ET Rory Shallis, MD; Yale School of Medicine, New Haven, CT Precision medicine can be simply defined as the identification of personalized treatment that matches patient-specific clinical and genomic characteristics. Learn about current standard treatment options, emerging treatment strategies, and the importance of genetic […]
March 26, 2022: Advances in our Understanding of the Management of MDS @12 pm ET Michael Keng, MD; University of Virginia, Emily Couric Clinical Cancer Center, Charlottesville, VA This webinar will describe recent advances in our understanding of the management of myelodysplastic syndromes and related myeloid neoplasms, and how these advances are being translated into […]
Saturday, February 12, 2022: Optimizing Transfusion Support in MDS @ 12 pm ET Lindsay R. Wilde, MD; Sidney Kimmel Cancer Center at Thomas Jefferson University Hospital, Philadelphia, PAThis webinar will explain how transfusion support can be optimized in the treatment of myelodysplastic syndromes (MDS). Strategic benefits and blood transfusion best practices will be discussed. View […]
January 22, 2022: Focus on Understanding Clinical Trials and How to Identify the Right One for You @12 pm ET Andrew M. Brunner, MD; Massachusetts General Hospital; Assistant Professor, Medicine, Harvard Medical School Today’s standard treatments for patients are based on previous clinical trials and it is important to think of clinical trials as a […]
We have planned a comprehensive series of webinars for 2024 bringing experts and the MDS community together to provide educational information, best practices, tools, and resources. Whether you are a newly diagnosed patient, a long-term survivor, or caregiver, our webinar series will have something for you. We will be collaborating with renowned hematology professionals who […]
APOS is pleased to present: Providing Psychosocial Support to Bereaved Parents in the Pediatric Oncology Setting Presented by: Wendy Lichtenthal, PhD & Gillian Regan, PhD Meet Dr. Lichtenthal & Dr. Regan HERE July 16th at 12noon EDT Cancer is one of the leading causes of death among children in the United States. Bereaved parents face an […]
October 16, 2021: CAR T Cell Therapy in MDS/AML @12 pm ET David A. Sallman, MD, Moffitt Cancer Center This webinar will provide an overview on CAR T cell immunotherapy, an approach that takes patients’ own immune cells and equips them with chimeric antigen receptors (CARs) that enhance their ability to target and eliminate cancer […]
12 PM – 2 PM ET September 25, 2021 – Toronto MDS Patient Webinar Updates from EHA 2021: Promising Treatment Advances for MDS and AML – Heather Leitch, MD, St. Paul’s Hospital, Vancouver, Canada Updates from the European Hematology Association (EHA) 2021 Virtual Congress will be presented. This webinar will provide an overview of new emerging […]
August 7, 2021: Outcomes for High-Risk MDS Patients Undergoing Transplant vs Standard Non-Transplant Therapies @12 pm ET Erica D. Warlick, MD, University of Minnesota Medical Center This webinar will provide an overview of the role of allogeneic hematopoietic cell transplantation (alloHCT) for high-risk MDS patients. Standard therapies for patients with MDS including hypomethylating agents (HMAs) […]
March 20, 2021: MDS & COVID-19 Vaccine Webinar @12 pm ET Peter T. Curtin, MD and Randy A. Taplitz, MD; City of Hope Medical Center This webinar will provide an overview of COVID-19 and myelodysplastic syndromes including frequently asked questions. The latest COVID-19 vaccines and what they mean for those with bone marrow failure disorders […]
Bone Marrow Transplants Date: Saturday April 10, 2021 Time: 12 pm (Eastern Time (ET)) Dr. Geddes will discuss the process for bone marrow transplants. For more information and to register go to: https://aamac.ca/events/webinar-bone-marrow-transplants/
April 17, 2021: Clinical Implications of Genetic Mutations in Myelodysplastic Syndromes @12 pm ET Rami Komrokji, MD; Moffitt Cancer Center This webinar will provide an overview of recent advances in the genetic understanding of MDS, with a particular focus on the emerging role for mutational data in clinical management as a potential tool to assist in […]
June 5, 2021: Becoming a Partner in Your Care: MDS Support Group @12 pm ET Sandra Kurtin, PhD, ANP-C, AOCN; The University of Arizona Cancer Center Join us for a free webinar to support our patients and loved ones. This webinar will address all aspects of becoming a partner in your care. We invite you to learn […]
Eval & Claim CME Credits* *CME/CE credits only available to participants that attended the LIVE session on Friday, December 4, 2020. Webinars Click the links below to view our presentations: Welcome – About the MDS Foundation, Inc Stephen Nimer, MD (MDSF Chairman) Sylvester Comprehensive Cancer Center, FL Program Overview and Objectives Mario Cazzola, MD […]
Missed our live webinar? View our previous live webinars at a time that is convenient for you. January 9, 2021: Updates from ASH 2020: Promising Treatment Advances for MDS and AML @12 pm ET Speaker: Amy Elizabeth DeZern, MD, MHS; Johns Hopkins Sidney Kimmel Comprehensive Cancer Center Updates from ASH 2020 will be presented. This webinar will provide […]
May 8, 2021: Transfusion Dependence and Transfusion Support in MDS @12 pm ET Lewis R. Silverman, MD; Icahn School of Medicine at Mount Sinai This webinar will provide an overview of transfusion dependency in MDS, focusing on blood transfusion benefits and risks. Understanding the impact of transfusion dependence, and answers to common questions will be discussed. Register Now
March 13, 2021: MDS: Factors to Consider in the Initial Treatment Approach @12 pm ET Speaker: Yazan Madanat, MD; University of Texas Southwestern Medical Center This webinar will provide an overview of MDS and what treatment path to take in a patient newly diagnosed with myelodysplastic syndromes. Factors, such as: the type of MDS; the prognostic […]
February 6, 2021: MDS: Understanding Disease Characteristics and Progression @12 pm ET Speaker: Azra Raza, MD; Columbia University Medical Center This webinar will provide an overview of MDS and how prognosis is determined, focusing on the MDS subtypes and disease progression. Understanding the diagnosis of MDS, details about the various approaches to treatment, and answers to common questions will […]
January 9, 2021: Updates from ASH 2020: Promising Treatment Advances for MDS and AML @12 pm ET Speaker: Amy Elizabeth DeZern, MD, MHS; Johns Hopkins Sidney Kimmel Comprehensive Cancer Center Updates from ASH 2020 will be presented. This webinar will provide an overview of new emerging treatments for MDS and AML patients. The latest promising clinical trials and […]
Understanding Clinical Trials Date: Tuesday, February 2, 2021 Time: 3:00 pm (Eastern Time (ET)) Dr Sabloff will review clinical trials in Canada. • How do patients qualify? • Where do patients find information about clinical trials? • How do clinical trials work? AAMAC EVENTS For more information and to register please check AAMAC’s website at […]
Iron & Iron Overload Date: Saturday November 28, 2020 Time: 1 pm (Eastern Time (ET)) Dr Cyrus Hsia will discuss • Why is iron important in the body? • How is iron toxic to the organs due to chronic transfusions? • How do I manage iron overload? AAMAC EVENTS For more information and to register […]
Self-compassion for Caregivers Date: Saturday November 21, 2020 Time: 1 pm (Eastern Time (ET)) Patricia Williams will explain the concept of Mindful Self-Compassion and explore the research into self-compassion, burnout, and caregiver resilience. There will be an opportunity to practice self-compassion exercises and to ask questions of the presenter. AAMAC EVENTS For more information and […]
Insight Into Caregiving – Monday, November 30th (10 to 11am PST) Click to Register
Coping With Cancer during the Holidays – Wednesday, November 18th (6 to 8pm PST) Click to Register
Date: Saturday October 24, 2020 Time: 2pm (Eastern) Speaker: Shauna Lindzon Topic: Eating well to boost your energy. Shauna will be demonstrating 2 easy and delicious recipes • Granola bites: and • a Ginger pear smoothie During the demonstration she will discuss the nutritional benefits of the ingredients and you will have the opportunity to […]
Date: Wednesday September 30, 2020 Time: 3pm (Eastern) Speaker: Reanne Booker Topic: Medical cannabis: therapeutic ‘pot’ential To register: • Go to https://attendee.gotowebinar.com/register/2329752298431905037; or • email info@aamac.ca; or • call 1-888-840-0039
AAMAC Canada Webinar 2pm (EASTERN TIME) Speaker: Dr Heather Leitch Topic: Latest research on MDS To register: • Go to https://attendee.gotowebinar.com/register/6977375854103833359; or • email info@aamac.ca; or • call 1-888-840-0039
Date: Friday September 18, 2020 Time: 2pm (Eastern) Speaker: Dr Heather Leitch Topic: Latest research on MDS To register, please: • Go to https://attendee.gotowebinar.com/register/6977375854103833359; or • email info@aamac.ca; or • call 1-888-840-0039 and leave a message
Notable to Host July 23 Webinar with Stanford University Cancer Center and MDS Foundation: Emerging Treatment Approaches for Higher Risk Myelodysplastic Syndromes Event explores current and new treatment options for MDS FOSTER CITY, CALIF. – July 13, 2020 – Notable, which is redefining cancer treatment by taking a functional approach to precision oncology in hematological […]
October 10, 2020: Stem Cell Transplant for MDS @12 pm EDT Speaker: Joseph P. McGuirk, D.O. University of Kansas Medical Center This webinar will provide an overview of the epidemiology of MDS. Risk Assessment, IPSS-R Prognostic Risk Categories, Allogeneic HCT will be discussed. Click Here to Participate
September 26, 2020: MDS Support Group Webinar @12 pm EDT Speaker: Jean A. Ridgeway, DNP, APN, NP-C, AOCN MDS Foundation International Nurse Leadership Board This webinar will address all aspects of becoming a partner in your care. Whether you are a patient or caregiver, you will be able to connect with others, gather ideas and learn about […]
August 29, 2020: Emerging Treatments for Low-Risk MDS @12 pm EDT Speaker: Barry Skikne, MD, The University o f Kansas Cancer Center This webinar will provide an overview on low-risk MDS focusing on strategies for patient management. Details on the various approaches to treatment including new promising clinical trials and answers to concerns of patients will be […]
July 18, 2020: Low-Risk MDS: Can we prevent progression? Updates from EHA 2020 will also be presented. @12 pm EDT Speaker: Casey L. O’Connell, MD; University of Southern California, Keck School of Medicine This webinar will provide an overview summarizing changes in the treatment landscape for patients with low-risk myelodysplastic syndromes. The concerns of low-risk MDS patients and […]
August 8, 2020: MDS Therapies & Options in 2020 @12 pm EDT Speaker: James M. Foran, MD, FRCPC; Mayo Clinic Cancer Center, Jacksonville, FL This webinar will provide an overview of the current treatment strategies for MDS patients. The latest promising clinical trials and research findings impacting the biology and treament of MDS patients will […]
July 25, 2020: What is MDS? How Do We Determine Prognosis? Updates from ASCO 2020 will also be discussed @ 12 pm EDT Speaker: Jamile Shammo, MD; Rush University Medical Center This webinar will provide an overview of MDS and how prognosis is determined, focusing on the MDS subtypes and disease process of MDS. Understanding […]
June 27, 2020: Familial MDS @ 12 pm EDT Speaker: Jane Churpek, MD, MS; UW Carbone Cancer Center, University of Wisconsin School of Medicine This webinar will provide an overview of familial MDS, focusing on whether MDS is hereditary and can you give MDS to loved ones. Inherited genetic predisposition for developing MDS and congenital […]
June 13, 2020: Treatment of High Risk MDS and the Indication for Stem Cell Transplant @12 pm EDT Speaker: Prapti Patel, MD; University of Texas Southwestern This webinar will provide an overview of high-risk MDS, secondary AML, and indication for stem cell transplant, focusing on strategies for patient management. Risk assessment, treatment options, as well […]
You are invited to join the MDS Foundation Joint Webinar with the Eurasian Hematology-Oncology Group (EHOG) on June 2, 2020 18.00-19.30 Eastern European Time (EET) 11 am – 12:30 pm Eastern Daylight Time (EDT) Dr. Stephen Nimer – Precision Medicine Approaches to MDS Dr.Moshe Mittelman – MDS Treatment – Today and Tomorrow Dr. Mustafa Cetiner […]
Missed our live webinar? View our previous live webinars at a time that is convenient for you. June 13, 2020: Treatment of High Risk MDS and the Indication for Stem Cell Transplant @12 pm EDT Speaker: Prapti Patel, MD; University of Texas Southwestern This webinar will provide an overview of high-risk MDS, secondary AML, and […]
FOCUS ON COVID-19: WHAT WE’VE LEARNED FOR PATIENT CARE Mikkael Sekeres, MD, MS will discuss issues related to the impact of COVID-19 on the care of bone marrow failure patients including the importance of patients remaining at home even as more areas reduce restrictions, adapting to telemedicine, and resuming treatments that may have been delayed. […]
AAMAC Canada Webinar 12pm (EASTERN TIME) Speaker: Reanne Booker, MN BScN NP PhD Student, University of Victoria Palliative and End-of-Life Care Services Foothills Medical Centre Topic: Medical Decision Making To register, please: • Go to https://register.gotowebinar.com/register/4308303679398255376; or • email info@aamac.ca; or • call 1-888-840-0039 and leave a message
11 am (PACIFIC TIME) Dr. Heather Leitch, Director Hematology/Oncology Research (SPH), Clinical Professor, St. Paul’s Hospital Brief update on Covid-19 followed by a Q&A Please note the revised time of this webinar To register: • email info@aamac.ca or • call 1-888-840-0039
12pm (EASTERN TIME) Cindy Murray – Nurse Practitioner, Princess Margaret Hospital Understanding your Bloodwork This webinar will be run as a Q&A session. Registrants are asked to share any questions they might have before the webinar begins. To register and sent us your questions, please: • email info@aamac.ca or • call 1-888-840-0039
Saturday April 18, 2020 Time: 11am – 12pm (EASTERN TIME) Speaker: Dr. Cyrus Hsia Topic: Understanding your Bloodwork THE SPEAKER: Dr. Cyrus Hsia, Hematologist at London Health Sciences Centre Dr. Hsia will be joining us to help you to better understand how to interpret your blood work results. Have your most recent blood work results […]
AAMAC is hosting a webinar on February 29, 2020 in recognition of Rare Disease Day. The details are as follows: Rare Disease Day is about raising awareness for people living with rare diseases around the world. This year it is on February 29, the rarest day of the year! AAMAC will mark Rare Disease […]
Webinar Wednesday January 29th, 2020 3pm – 4pm (EASTERN TIME) Speaker: Dawn Richards, PhD, Director of Patient and Public Engagement, Clinical Trials Ontario Topic: The Basics about Clinical Trials To register email info@aamac.ca or call 1-888-840-0039. Log in details will be emailed closer to the date of the webinar
ThePatientsChannel.com Videos Living with MDS Drorit Merkel, MD, Cancer Biology Research Center, Tel Aviv University, Tel Aviv, Israel, discusses some of the issues that can arise for those living with myelodysplastic syndromes and what can be done to minimize these issues. This interview took place at the 2nd Regional Symposium on Myelodysplastic Syndromes (MDS 2020), […]
Patient Support Meetings & Webinars Webinar: Understanding & Managing Iron Overload in MDS – To learn more and register, please access this link https://www.pathlms.com/aamdsif/webinars/878. All meetings are offered free of charge to patients, support persons and healthcare providers. Webinar: Understanding & Managing Iron Overload in MDS Friday, June 10 1:00-2:30pm EST Aplastic Anemia & Myelodysplasia Association of […]
Psychosocial Aspects of Care amidst a Pandemic (Carers and Patients) Date: September 27, 2022 Time: 2:00 p.m. (Eastern Time) Speaker: Jocelyn Lepage, Clinical Nurse Expert To register via zoom go to: https://us06web.zoom.us/webinar/register/WN_a4MTf_gRThq34BgiryoEbg
Transitioning from Pediatric to Adult Care – Inherited Bone Marrow Failure Syndromes Date: June 14, 2022 Time: 7 PM (ET) Speaker: Dr. Yves Pastore Objectives: Please join us for a discussion and update of a national initiative to promote care for adults with inherited bone marrow failure syndromes in Canada as patients transition from pediatric […]
Patient-Oriented Research and Patient Engagement in Clinical Trials: An Introduction Date: Wednesday March 30, 2022 Time: 11 AM (Eastern Time) Speakers: • Stuart Nicholls, PhD • Alicia Hilderley Patient At the end of this session, participants should: • Be able to describe patient-oriented research (POR) and patient engagement (PE) • Understand the foundational principles behind […]
MDS Treatment – Side Effect Management & “Ask a Hematologist” Date: March 24, 2022 Time: 2PM (Eastern Time) Speakers: • Danielle Moch, BScN, RN, MN, CON(c), Program Lead, Community Cancer Care Coordination Cancer Care Alberta – Alberta Health Services • Courtney Walz, BScPharm, Cancer Care Alberta – Alberta Health Services • Dr. Dwip Prajapati, MD, […]
Get Free Access to Genetic Testing for Underserved MDS and Hematologic Malignancy Patients June 23, 2021 12:00 PM Pacific Time (US and Canada) Register Now
17 de julio de 2021: Webcast de MDS en Español @12 pm hora del este Que son los sindromes mielodisplasicos? Guillermo Montalbán Bravo, MD, MD Anderson Cancer Center Este seminario les va a proveer como se determina el diagnóstico de MDS, se estará enfocando en los subtipos y la manifestación de MDS. Comprendiendo el diagnostico […]
I find the “on demand webinars“ offer a broad spectrum of valuable information. Moreover the MDS Foundation is at the center of helping patients, their families, caregivers, etc. It’s comforting to have that support through the journey of MDS.
God on high, hear my prayer, In my need, you have always been there. He is young, he’s afraid, let him rest, heaven blest. Bring him peace. Bring him joy. He is young. He is only a boy. Let him live. You can take. You can give. Let him be. Bring Him Home, Les Miserables […]
The following information was prepared in collaboration with MDS Foundation Medical and Scientific Advisory Board members Rafael Bejar, MD, PhD and Rena Buckstein, MD, and MDS Foundation Board of Directors member Michael Savona, MD. Recommendations for MDS Patients: MDS patients showing no symptoms, not on treatment, with scheduled follow up visits for count checks, […]
2020 ASH Registration Virtual Symposium December 4, 2020 7:00 am – 10:00 am (PT) Register Now ACTIVITY OVERVIEW Dr. Bejar will examine current challenges in MDS diagnosis, including the use of molecular profiling and the diagnosis of clonal cytopenia of undetermined significance (CCUS). Dr. DeZern will describe her recent experience in managing MDS in the […]
Video Lecture Series Video Lecture Title Lorem Ipsum is simply dummy text of the printing and typesetting industry. Lorem Ipsum has been the industry’s standard dummy text ever since the 1500s, when an unknown printer took a galley of type and scrambled it to make a type specimen book Video Lecture Title Lorem Ipsum is […]