Caregivers are an essential part of the health care team. They are most often family or close friends, but may also be professionals that assist with organizing and delivering care. There are many distinct roles for caregivers. Many involve everyday activities such as home management, shopping, and running errands. When you are living with a diagnosis of MDS either yourself or with your loved one, these daily routines may be more difficult to maintain. In addition, there are several other tasks that will be necessary to accommodate the treatment routine.
The time spent enjoying the company of family, including children, is important. Most patients with MDS can enjoy their family without restrictions. Discuss any recommendations for limiting contact with children with your health care team. Specific recommendations for contact with children are recommended for patients undergoing a stem cell transplant, leukemia therapy, or who have very low white blood cell counts (neutropenia).
MDS Foundation: multisite-demo.com www.BuildingBlocksofHope.com
Cancer.net: Being a Caregiver http://www.cancer.net/coping-with-cancer/caring-loved-one
Cancer.net: Sharing Responsibilities:
Family Caregiver Alliance: Community Resources https://www.caregiver.org/caregiving-home-guide-community-resources
Be the Match: Caregivers and Bone Marrow Transplant