The diagnosis of MDS is often unexpected and filled with both immediate and long-term challenges. Assisting patients and their caregivers to live with the highest quality of life possible despite the diagnosis of MDS is the primary mission of The Myelodysplastic Syndromes Foundation. Cancer patients need both specialized medical care and support services to address a range of issues that can affect their health and well-being.
There are many excellent resources to aid in managing day to day challenges.
Organizing your resources and asking for help is the first step.
We encourage you to contact the MDS Foundation
1-800-MDS-0839 (within the US)
1-609-298-1035 (outside the US)
In addition to The MDS Foundation (multisite-demo.com ), there are many other resources that may help you manage each day.
We have included links to specific resources from several well-respected cancer advocacy organizations that provide general information for cancer patients.
Be the Match: Information for patients undergoing bone marrow transplant https://bethematch.org/
American Cancer Society: https://www.cancer.org/about-us/what-we-do.html Helpline 800-227-2345
Cancer Care: http://www.cancercare.org/contact Services: 800‑813‑HOPE (4673)
Cancer.net: The American Society of Clinical Oncology (ASCO) patient information website (www.cancer.net )
Oncolink: Online links to cancer resources. https://www.oncolink.org/