MDS is a bone marrow failure disorder

Out-of-home mobility is necessary for accessing commodities, making use of neighborhood facilities, and participation in meaningful social, cultural, and physical activities. Mobility also promotes healthy aging as it relates to the basic human need of physical movement.  You may have limited mobility because of your MDS or other illnesses.  We want you to remain safe and encourage you to ask for help.

Things you can do:

  1. Keep a log of symptoms that you are concerned about. These can be tracked in the MDS Manager Symptom Tracker.  Discuss these with your health care team.
  2. Keep all your appointments as scheduled.
  3. Talk with your health care team about home safety evaluations and other resources to help you maintain or improve your mobility.
  4. Ask your health care team if physical therapy might be helpful to improve strength and mobility.
  5. Consider installation of assistive devices, such as shower bars, an elevated toilet seat or bars next to the toilet.
  6. Make sure there is good lighting in hallways and bathrooms.


Additional Resources:

MDS Foundation:

Cancer Care: Nutrition, Physical Activity and You

American Cancer Society:  Weakness

Review answers to commonly asked questions or get answers to your questions from an MDS expert