Phone within the US: 1-(800)-637-0839 Outside the US only: 1-609-298-1035 Fax: 1-609-298-0590 e-mail patientliaison@mds-foundation.org
or write:
The MDS Foundation 4573 South Broad St., Suite 150 Yardville, NJ 08620
Please note: The MDS Foundation does not provide medical treatment or advice. It is not subject to HIPAA and cannot guaranty the privacy of any medical records or health information you disclose to us.
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Eurordis – Rare Diseases Europe
28 February, worldwide, more information
http://www.eurordis.org/
