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Anyone with Very High Risk MDS and no transplant

Home Demo forums Patient Message Board Anyone with Very High Risk MDS and no transplant

Viewing 5 posts - 1 through 5 (of 5 total)
  • Author
    Posts
  • #44713
    Shelley Frady
    Participant

    My mom is newly diagnosed with Very High Risk MDS and she doesn’t meet criteria for a transplant.

    Could you share your experience? I just really don’t know what to expect.

    #44714
    Nancee Noble
    Participant

    Very little info on what to expect. I too, am in that position. Have been told there is nothing more they can do. I think age makes a difference on what options are available.

    #44727
    Donna
    Participant

    WHat about the mini transplant?

    #44728
    Shelley Frady
    Participant

    What is a mini transplant?

    #44768
    Donna
    Participant

    Shelley…….It is also called reduced intensity transplant. I understand that up to a certain age, you still may be able to get a mini transplant when you no longer qualify for the regular transplant. My understanding is that the chemo they give you is less intense and easier for older people to tolerate. YOu can look it up or ask your doctor about it to see if you Mom is a candidate. Here is a little blurb about it:
    A mini transplant has many names:
    Reduced intensity Transplant
    non-ablative or non-myeloablative transplant,
    Non-myeloablative”, because the conditioning therapy does not fully ablate (kill off) the bone marrow myeloid cells prior to the engraftment or transplant phase of therapy.
    Donna

Viewing 5 posts - 1 through 5 (of 5 total)

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