MDS is a bone marrow failure disorder
MDS is a blood cancer
Learn More >

Welcome to the MDS Patient Message Board Post New Thread

Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

BLOG

Viewing 3 posts - 1 through 3 (of 3 total)
  • Author
    Posts
  • #17909
    connieore
    Member

    When I received the diagnosis of MDS RAEB-2 in January, 2006, I began a blog about how my life had changed. My son is my web master, and you might be interested in reading about how this has changed our lives. The site is ConnieOre.com.

    #17910
    jga_socal
    Member

    OMG! What wonderful writing!

    “It is difficult to think about the body as an entity that is no longer a comfortable place for the spirit to abide.”

    Your perspectives are simply amazing and warm my heart. Your prose is truly poetic. I wish I could write a sentence half as magical as this:

    “The world moves onward as it did yesterday and the day before, and Easter comes again bearing hope and good news. Eggs are colored, meals are readied, and Charles and his contemporaries are rehearsing beautiful music all around the globe – from the quiet melodies directed toward Maundy Thursday to reflective and somber sounds of Good Friday through the best sounds of grandeur following the rising sun on Easter Morning.”

    I will continue to read your web log.
    Thank you! Your journey will now be mine and your continued well-being will be a prevalent subject in my prayers.
    Jim

    #17911
    Harold
    Member

    Connie, I also very much enjoyed your blog! And Dr. Ore’s music as well. You are both blessed to have these wonderful gifts of expression. Harold

Viewing 3 posts - 1 through 3 (of 3 total)

Register for an account, or login to post to our message boards. Click here.

  • You must be logged in to reply to this topic.

Login

Login

Search Forums

Review answers to commonly asked questions or get answers to your questions from an MDS expert