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Bone Marrow Biopsy question

Home forums Patient Message Board Bone Marrow Biopsy question

This topic contains 12 replies, has 10 voices, and was last updated by  Rose eden Guanzon 3 months, 2 weeks ago.

Viewing 13 posts - 1 through 13 (of 13 total)
  • Author
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  • #44969

    Kathy Lynch
    Participant

    Hi All, My first BM biopsy showed atypical anemia…but there was not enough tissue gathered for a further diagnosis. I’ve had 6 blood tests in the past 10 months…1 test my RBC was in the 9s, 4 have been in the 10s and one in the 11s.
    I am due for my next BM biopsy next month… my MDS specialist wants it done at Stanford. BUT Stanford does NOT use sedation??? They do for colonoscopies but not bone biopsies???
    The hospital where I had my first one does. The whole procedure was “painless” I did have the normal discomfort afterwards for a couple of weeks.
    Soooo my question is from those of you who have had biopsies what would you do? I have asked my MDS guy to explain to me why I should not have it done where I can be twilight sedated….waiting for an answer….

    #44970

    Michael
    Participant

    Kathy
    My first bmb was done as outpatient at local hospital with sedation, it was absolutely painless. This was not under direction of MDS expert nor at a Center of Excellence. Since, I have had 3 follow up bmb’s in doctor office (MDS expert at Center of Excellence). Those were not pain free but not so horrible either. You do feel pressure when the aspirate is drawn. I prefer the bmb’s be done by the expert and the short period of pain is not an issue for me. I have been able to make the 3 hour drive home from C of E no problem.

    Best wishes.

    #44971

    Nancee Noble
    Participant

    I had it done with Demerol. No pain, no aftereffects.

    #44972

    Janice Sheppard
    Participant

    i’ve had 4 bone marrow biopsies, none of them with any sort of sedation of medication. i don’t remember the first 2 being traumatic, but that was a very long time ago. i had one done by the hematologist 10 years ago and he crucified me, it was an absolute nightmare. the last one was done by a nurse practitioner that does all the bone marrow biopsies in the office and she did a FANTASTIC job. i was told ahead of time that her patient satisfaction rates are excellent. i sobbed from relief after it was done. so, i guess my recommendation would be to ask who’s doing it and what their patients say about their experience.

    #44976

    Curtis Hicks
    Participant

    KATHY…to date Ive had 4 bone marrow biopsies. One with sedation and three without sedation. I can honestly say none of them were any problem at all! It’s a procedure that doesn’t take much time. If it’S done by an expert, you’ll have very little to no pain!

    #44977

    Kathy Lynch
    Participant

    Thanks for all of your input! It sure helps to have people to reach out to!

    #44979

    Donna
    Participant

    Hi Kathy,
    I’m a nurse and a wicked sissy when it comes to pain, plus I had seen BMBs done in the past and I knew they could be painful. I opt for conscious sedation. I’m awake through it and talking, feel a little pressure and that is all. Someone has to drive you though. Last time I had nausea/vomiting on the way home but it was my own fault because I at too much too soon. That darn banana was too heavy! Anyway, my first MD at a center of excellence wanted to do the BMB without sedation. That is when I went for another opinion at another center of excellence where I stayed. They don’t mind at all giving me a little conscious sedation and that is good with me. For me, I would always choose conscious sedation. I realize I am lucky to have two good hospitals within driving distance.
    Donna

    #45009

    Chris Ballmer
    Participant

    Yeah, depends on the situation. In my BMB the doctor is really gentle, but the two supporting nurses are distracting, talking… You can take charge and tell them how you want it done, sedation or not… if you don’t get to choose that sucks. They are there for you remember. There should always be very good communication, don’t trust whatever they do, make sure you understand what and how things are working… that’s why they have to write the side they are taking out shoulders with a pen… medical professionals make mistakes, but only occasionally, you just don’t want it to be on you, and you can be the squeaky wheel… it’s our body after all.

    #45012

    emily59
    Participant

    I had one without and it was horrible. Since then I’ve had 5 with sedation and had no pain. I will never not be sedated. You can likely find another place that will do what you want.

    #45013

    Kathy Lynch
    Participant

    Believe it or not I am seeing one of the noted MDS doctors… at a”center of excellence” that does not offer sedation! And even though I have spoken up…. I have been told that the sedation can cause problems??? PLEASE tell me why the same center does their colonoscopies WITH sedation??
    Many of us have to have BMBs a couple of times a year!
    I find this border line cruelty and barbaric!
    Since it is a LARGE “center” I don’t think I can do much to change it, especially if the doctors won’t help!
    Has anyone else gone to the MDS “centers of Excellence” and been either denied sedation or given sedation.
    If I get enough people saying other centers do offer I might petition the foundation to help get this “rule” changed. Thanks for ALL your input!!!

    #45031

    Donna
    Participant

    Hi Kathy,
    I was seeing an MD at a Center for Excellence who wanted to use local and some med by mouth (I forget what). He said there is no risk in the BMB procedure but once you add anesthesia of any kind, you add risk. I went to another Center for Excellence and have it done with conscious sedation. When I left the first MD’s practice, he did call me to discuss it. At that point he said he would have given me sedation if it was that important to me, but I had already made plans to go elsewhere for another opinion anyway. So, maybe if you push for sedation, they will agree. If not, is there another Center of Excellence near you?
    Donna

    #45138

    Paul Dyer
    Participant

    Kathy,
    I just had my 4th bmb, none with sedation, just lidocaine. You feel th pinch of the needles for the lidocaine, and pressure/burning for the actual marrow draw. It’s not horrible pain. I guess it all depends on how you deal individually. Hope my experiences help!
    Paul

    #45772

    Rose eden Guanzon
    Participant

    My husband is the one with MDS. He wants me to respond to this. He has undergone 8 bmb since he was diagnosed last year. No sedation is done on him. The doctors does not just get fluid, +hey also get a bone chip when they do a bmb. He swears he does not feel pain and that the injection hurts more than the actual aspiration. So i guess every person is different. But if it is any consolation, i know he is telling the truth. I could not really see any pain on his face.i have been with him on every one of those bmb procedures.

Viewing 13 posts - 1 through 13 (of 13 total)

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