Confused about CBC blasts
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May 16, 2007 at 3:08 pm #18050CarolineGMember
Why is it that whenever someone on this Forum gives an opinion or advice that some other people don’t agree with they start throwing stones and insults at each other like a bunch of children?
ADULTS who use Forums should be mature enough to know that nothing said is to be taken as law. Only opinions and experiences are shared. Are you all so scared of your own inadequacies and futures that you cannot be kind and just accept what is written and move on if you don’t agree? Why the backbiting and insulting??? Why do you feel it so important to revert back to petty chilhood tactics? It is natural to be oversensitive when we are frightened or under stress…which all of us here are. But, for goodness sakes, STOP IT !!! If someone says something that YOU don’t like, overlook it. If you see a posting by a particular person who you don’t like…DON’T read it !! Simple.
No wonder so many people think lowly of internet Forums. I am ashamed to think of how many actual medical professionals look in on this Forum and see the juvenile behaviour. I am sure it gives them something to laugh over while having coffee with their peers.
I will never understand why some people continue to post on this Forum when they have been treated so unkindly by people who they consider important enough to attempt to share experiences with. Patti…you are alot stronger than I am, that’s for sure.
Caroline
May 16, 2007 at 3:21 pm #18051Jack_dup1MemberSorry I posted, I was trying to get back to the subject of CBC’s and blast.
JackMay 16, 2007 at 3:29 pm #18052JimbobMemberThank you, Caroline. You are a lot stronger than I am and I also think Patti is a lot stronger than most for putting up with the abuse she takes. I do not take her information as gospel but I hope she continues to post as her information has been most helpful. It has led me to research many items that have been helpul. She has had a lot of experience with a number of different healthcare providers. She doesn’t claim that her way is the only way, just that it is what she has experienced. Again, I am grateful that she continues to post. I wiah I had her perseverence and committment.
JimMay 16, 2007 at 5:47 pm #18053CarolineGMemberJim.
I’m not strong…only terribly disgusted to be a part of something that started out so special and helpful which is turning out to be such a dog and pony show.
I rarely even read this Forum anymore since it contributes very little to my Dad’s healthcare or ideas to improve his quality of life. I received an email from my friend early thismorning telling me to read about the continuation of Patti’s Witch Hunt. Had I not received the email, I wouldn’t have had the opportunity to express myself FINALLY !!!
Not only has this Forum experience shown alot of us the bitterness of many humans when put to the test of having to face disease with grace and dignity…it has also made a complete and total mockery of this disease.
It would be very unfortunate if someone really did have that MAGIC BULLET that could help one or all of us but refused to share their knowledge for fear of what the condemnation against them could potentially be. God help each and every one of us if that is the case.
Ask yourselves…would YOU share something that you thought was a breakthrough with a group of people who could possibly embarass and humiliate you??? I can’t help but to keep thinking of the line that Chris said in an earlier post where she says: “God help your retarded sister-in-law who had been placed in your sole care, along with your M-I-L’s house and all her belongings.” WHAT in God’s Name does THAT have to do with Leukemia ?!?!?!? I know that I would not run the risk of sharing anything that I had learned if it meant that a poor defenseless woman could be used as a pawn.
I don’t even feel sorry for being so heated in what I have to say. It has been a long time coming.
As for Patti…maybe she can’t cure everyone but she did alot of good for a woman who was very special to her. She also made us THINK about things whether we all agreed with her techniques or not. If Patti never posted again…I wouldn’t blame her one bit. WHY should she??? As for me, I will continue to be her friend…especially NOW when she needs friends the most.
Caroline
May 17, 2007 at 12:10 am #18054cthomas555MemberCaroline says:
“If you see a posting by a particular person who you don’t like…DON’T read it !! Simple.”
It seems to me that you don’t follow your own advice.
I was told about all her “supporters” being summoned to come over here to her defense. Hi Jim Bob!
I said what I have to say and you have your right to say what you have to say as well.
Chris said,
“God help your retarded sister-in-law who had been placed in your sole care, along with your M-I-L’s house and all her belongings.”
WHAT in God’s Name does THAT have to do with Leukemia ?!?!?!?
Hey, Patti posted it in a public discussion in regards to her MIL and her leukemia so it was open to opinion. I gave one.
If you want to keep this controversy going, continue to keep the thread going. If you find it so offensive why don’t you just move on instead of adding fuel to the controversy.
May 17, 2007 at 6:21 am #18055sugarwhaleMemberDear Forum,
It has been a very long time since I have posted on the Forum. When I first came, I felt thankful that the Forum consisted of all kind, understanding, compassionate members. It was comforting feeling that I had a place to go for help.
Sadly, I was wrong. Chris’s post above is a good example of why I quit the Forum.
Oh, and just for the record, NO ONE ever suggested that I come here and defend anyone. I am just completely disgusted.~~~ Janet
May 17, 2007 at 7:29 am #18056choijkMemberDear Beloved Friends,
I am fairly new to the forum. When I first found this forum, just as Janet indicated, I was thankful, to say the least. It has been God send. Within the past 2 months, I have formed many lifetime friendships with many members on this forum from all over the world (San Diego, Augora Hills, Austin, Portland, Canada, Singapore, Sweden) and I am thankful to have found each and every one of you. I have also spoken to another caring member on the telephone (thank you Eve) who took her time to share their story with me, while giving me words of wisdom and encouragement. I hope everyone continues to post their experiences as I found them to be very (EXTREMELY) helpful. I value everyone’s opinions whether or not they will work specifically for my dad, as it can help someone else.
Unfortunately, there will inevitably be many more new members in the future who will be coming onto this forum to look for advice and support. I hope many of the old members reconsider and continue to post as everyone’s advice and support is very much valued and NEEDED! MDS is such a rare disease and many families do not hear about until the diagnosis.
When I found out about my father’s diagnosis, I vowed to myself that even though no matter what happens to my father, I will stand up and join the fight against MDS. It is a life long commitment I made to myself and I come before everyone on this forum right now that I will never give up the fight and continue to spread the awareness even if we end up losing the battle. I am willing to move heaven and earth until there is a cure for MDS and other similar bone marrow failure diseases.
It is both my wish and prayer that everyone continues to post that we can continue to learn from one another and fight against this deadly disease.
God bless everyone.
May 17, 2007 at 3:17 pm #18057BkwitsMemberThanks for your post June. It was a breath of fresh air. Now can’t we just drop this and move on?
BarbMay 17, 2007 at 3:31 pm #18058CarolineGMemberA breath of fresh air ?!?!? What kind of smog do you live in that you consider that kind of ignorance a breath of fresh air?
Has the stress and upset of this disease and your losses hardened you this badly or was there such a shallow depth of character in some people floating around in this forum all along?
May 17, 2007 at 3:37 pm #18059CarolineGMemberBarb.
SORRY !!!!
I thought you were thanking Chris for the breath of fresh air. I was so taken aback that I answered in haste.
After all of the nasty comments that I have read since yesterday, I assumed it was another one.
Sorry Barb,
CarolineMay 17, 2007 at 3:42 pm #18060BkwitsMemberCaroline,
I found June’s post to be a “breath of fresh air” since she was non-judgemental, and trying to bring everyone together. I don’t know what you read into what I said. Others may judge my “depth of character” but, fortunately or unfortunately, I am anything but “hardened” by my losses. I am so sorry if I upset you, that was certainly not my intention.
BarbMay 17, 2007 at 3:58 pm #18061BkwitsMemberCaroline,
I got your apology after I posted. I see where you were coming from. I hope we can get back to helping each other.
Best wishes, BarbMay 17, 2007 at 4:51 pm #18062JASMINEMemberOh my gosh Caroline!
What is wrong with you? After reading all
of the posts on this thread I find yours
most offensive. You have so much anger
and hostility! Please sit back, take a
deep breath, then as Barb wisely posted:
“NOW CAN’T WE JUST DROP THIS AND MOVE ON”
JasmineMay 17, 2007 at 9:38 pm #18063JimbobMemberSorry, Chris. No one suggested I support Patti. After reading the crap that was getting slung, I had to respond. I do continue to read all of the posts I can. NONE of us know everything. We all learn from experience. A bit of information from even someone we do not normally agree with might be what sends us in the right direction and onto a path for recovery and better quality of life. Le’t try to keep the antagonism and bad experiences off this forum.
JimJuly 31, 2007 at 3:21 am #18064Bluyz1966MemberJust curious. My Moms Doc told her today that he needed to keep an eye on her blasts, that they were up to 6%. I checked all her CBC w/Diff reports for the past two months. There was only one in June that showed blasts, 1%. Then it went like this:
July 2; 2%
July 23: 4%
July 29: 6%Her doc mentioned AML. Said she has the kind that can transition. Is the increased blast percentages a sign of this? He only said, “it could be”. Tell me if you know. Anyone can also email me privately.
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