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Dacogen not working

Home forums Patient Message Board Dacogen not working

This topic contains 3 replies, has 2 voices, and was last updated by  Rita Knopick 5 months, 1 week ago.

Viewing 4 posts - 1 through 4 (of 4 total)
  • Author
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  • #36903

    Rita Knopick
    Participant

    My husband is 78 and suffers from MDS Poor prognosis. He just completed 6 months of dacogen had a bone marrow biopsy showing the dacogen is not working. Oncologist suggests another opinion. Suggestions of where to go.

    #36904

    Sherry Pratt
    Participant

    Rita,
    Where do you live?

    #36905

    Rita Knopick
    Participant

    PA

    #44899

    Rita Knopick
    Participant

    Just an update. Thanks to Audrey at the MDS foundation we did get an appointment at a MDS Center of Excellence in Rochester, NY in August. The specialist agreed with the local oncologist but recommended he continue with the Dacogen and I am happy to report his condition is stable at the moment. The Dacogen seems to be working although all blood levels remain low.

Viewing 4 posts - 1 through 4 (of 4 total)

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