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Dacogen not working

This topic has 3 replies, 2 voices, and was last updated 5 years, 3 months ago by Rita Knopick.

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July 17, 2018 at 6:07 pm #36903

Rita Knopick
Participant

My husband is 78 and suffers from MDS Poor prognosis. He just completed 6 months of dacogen had a bone marrow biopsy showing the dacogen is not working. Oncologist suggests another opinion. Suggestions of where to go.

July 17, 2018 at 9:46 pm #36904

Sherry Pratt
Participant

Rita,
Where do you live?

July 17, 2018 at 10:30 pm #36905

Rita Knopick
Participant

PA

January 5, 2019 at 9:21 pm #44899

Rita Knopick
Participant

Just an update. Thanks to Audrey at the MDS foundation we did get an appointment at a MDS Center of Excellence in Rochester, NY in August. The specialist agreed with the local oncologist but recommended he continue with the Dacogen and I am happy to report his condition is stable at the moment. The Dacogen seems to be working although all blood levels remain low.
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