Hi Rahul
I sent you an email, but just in case you did not receive it.
My mothers blast count did the same.
Don’t know what her blast count was at Diagnosis in December 2004, but in July 2006 she had two BMBs one showed ‘stressed and non-existant bone marrow and blasts.’ Her Doctor was rather happy, hoping it was AA, but then re-did the BMB because she wanted to confirm the diagnosis herself, turns out blast count was actually 10%!
March 2007 BMB showed a blast count of 4% – Mom did not take any meds to decrease blasts. Then in October 2007 BMB showed blasts to be at 12%.
We don’t even bat an eyelid at the counts anymore. Mom is going for quality rather than quantity. Despite very low counts – 1/3 of normal, and tx every 2 weeks she is actually doing ‘very well’ – I believe it is her frame of mind. She travelled to Europe last September and we are now planning a five day trip to the Stellenbosch Winelands, she plans to eat as much as she can!
Whilst I am online, Mom is now doing 1000mg Exjade daily without any side effects, in fact without it she simply loses her apetite completely. Also tests show that her body is not affected by the Exjade. She deems herself to be one of the lucky ones. Not everyday is plain sailing, some days she’d rather just stay in bed, but she’s learnt that tomorrow is usually better, and as long as there are more ‘better’ days she will carry on.
Take care everyone, you are all in my thoughts everyday.
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