MDS is a bone marrow failure disorder
MDS is a blood cancer
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Exjade Experience

Home Demo forums Patient Message Board Exjade Experience

Viewing 3 posts - 1 through 3 (of 3 total)
  • Author
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  • #33828
    lynne
    Participant

    I have been on Exjade for 5 years. My ferritin runs in low to mid 3000. What has been your success with it?

    #33849
    Gayle Nicholson
    Participant

    I was put on Janeau and dropped 1599 points in 9 months. I was 3500 and am now 1900. you have to get your Dr. to apply to have you not the list to take the new medicatios. Good luck
    .

    #33850
    lynne
    Participant

    Were you ever on Exjade? How often do you get blood transfusions? I will ask my hematologist. Is it a daily pill?

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