Ellen,
I have low risk form of MDS on watch and wait, diagnosed june 2017. I do have fatigue issues, although fairly mild I believe, based on what I hear from others. I always feel a little tired and get winded very easily if I exert myself. Usually after some exertion if I sit for a while I return to normal(at least normal since MDS) and I can go on about my business. I have noticed that I do go in cycles where I get exhausted much easier for a few days and then it goes back to my normal, so I don’t know if there are times my red blood cells are in a down turn and then return? not sure. I have been feeling better with less fatigue the last couple of months and when I went in for blood work last week all my counts were at their highest level they have been all year so hemoglobin levels etc has a direct effect on fatigue I think. I don’t know if this helps you or not, one thing seems to be certain with this disease, it effects everyone differently and its tough to find a “usual” for everyone. I wish you all the best,
Allan
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