Guilty to ask but know y'all understand

[czaring]

I’m reading of the passing of other parents here … and feeling lucky yet scared. My mom was doing great with Aranesp until the spring when the shot was withheld – due to very low/normal #’s. Only reds were affected. Red then dropped & wouldn’t recover. Tried a round of Revlimid … Platelets fell from normal to 16!! Now whites have dropped out from under her too!! Phooey!! (not what I wanted to say) Is there any encouragement out there? Currently doing no meds .. just getting Txs. Scary!! So sorry for those hurting from loss right now.

[sdrake]

I understand how you feel. I remember when Dad was doing so well, and I felt guilty when I read of others’ struggles. Then the struggles became our own. I don’t want to be discouraging, but from Dad’s experience I do know that things can change in a hurry. That being said, Dad never gave up and kept trying everything suggested by the doctors. Has your mother ever tried Vidaza? Dad had a great response to it, as have many others. I wish your mom the very best. Please know that others understand and care.

Shari

[Zoe]

Czaring,

Pretty user name!

Revlimid can drop counts. Usual protocol is to stop Revlimid until counts rebound, then restart at a lower dose. Don’t panic, the count drop is to be expected, and shouldn’t be permanant. How long ago did she stop her Revlimid?

http://www.rxlist.com/cgi/generic/revlimid_ids.htm

The above link should take you to a page explaining the protocol.

Keep us updated.

Zoe

[Author]

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