having CT bone marrow biopsy?

[Jenny Maher]

I’ve had mild MDS since 2003 though recently I’ve been neutrapenic 0.8 am seeing a hematologist have been on neupagen to control my levels he ordered a CT- BMB I’ve never heard of it though it’s scheduled for April 16th he took me off the neupagin to get an accurate reading though I’ve been dealing with rashes, fatigue and now sore throat with swollen glands. Is it safe to be waiting so long with the low count?

[mdsfound]

Dear Jenny, Thank you for your post. I would definitely seek a second opinion from an MDS expert. You have many questions and it is understandable that you don’t want to be undertreated. I would recommend that you go to one of our Centers of Excellence in MDS for a second opinion. Following is a link to our Centers of Excellence worldwide https://www.mds-foundation.org/mds-centeres-of-excellence/. I hope this information helps.

[Author]

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