How likely will MDS patients need nursing home care?

[Philip Fallacaro]

Assuming the worst eventual MDS prognosis, is a nursing home stay usually required. And how long?

[mdsfound]

Dear Philip, A nursing home stay is not supportive care for someone who has MDS unless they did not have a caregiver and were not ambulatory. There are treatments available but it is important to be very carefully assessed before undergoing any treatment. Benefits versus risk analysis should be done with any treatment. I know this is a difficult situation for you and I would recommend that you go to one of our Centers of Excellence in MDS for a second opinion. Following is a link to our Centers of Excellence worldwide https://www.mds-foundation.org/mds-centeres-of-excellence/. We also have a wonderful information program called the Building Blocks of Hope which we can send you via postal mail. If this is something that you would be interested in, please forward your mailing address to patientliaison@mds-foundation.org. In the meantime, you can also view this video https://www.mds-foundation.org/bboh/. I hope this helps.

[Author]

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