You know, I’m no doctor. I’m ready to accept that these histories change nothing as far as our current situation goes. My great-grandmother came from Germany in the latter half of the 1800’s, found her picture and she had one eye that is completely white, maybe glaucoma; maybe not. Her daughter (my mothers mother) had the most horrible case of crippling arthritis (autoimmune), completely useless hands and could barely walk. I remember as a child my mother taking her to get shots of gold in her knees, she wore special open shoes cause her knarled bones could not fit in normal shoes. It started when she was 26. Her husband (my mothers Dad) died suddenly after minor surgery-possibly hemophilia ( isn’t that autoimmune)? He was 38. My mother was treated for over 20 years for cold agglutinin disease (very rare,guess what? AUTOIMMUNE) blood RH neg. There is 14 years separating my sister and me, she lost 5 babies between us. I was early, teeny, and transfused at birth. I have had 3 surgeries in the last two years for spontaneously detached retinas. Remember my great-grandmother? She was 23 when she had her 1st child.
Keelyn has always been anemic and never had a normal PAP (the doctors always just told her to take iron pills). She had Aubry at 22, nine days before his 1st birthday-because her oncologist/hemotologist in Austin was hesitant to diagnose her-we went to MD Anderson and they came up with MDS/RAEB. Weird, weird, weird-just my opinion. Do you think any of the doctors want to hear my story? NO
Her MD Anderson doctor told me “it’s very sad”
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