MDS?

[CEYHAN KAYRAN ISCİ]

My dad is 86 years old, and his hematologist told us that at this age we dont do bone marrow bıopsy since it will no change the treatment, he is taking blood transusion when needed. What do you recmomend us? we are living in Turkey

[mdsfound]

Dear Ceyhan, Thank you for your email with information regarding your father’s health. I know this is a difficult situation for you and I would recommend that you take him to one of our Centers of Excellence in MDS for a second opinion. Following is a link to our Centers of Excellence worldwide https://www.mds-foundation.org/mds-centeres-of-excellence/. We also have a wonderful information program called the Building Blocks of Hope in Turkish here: https://www.mds-foundation.org/wp-content/uploads/2015/11/BBOH_Handbook_A4_TRK_11.12.15_single_ebook.pdf.

In the meantime, you can also view this video https://www.mds-foundation.org/bboh/. I hope this information helps. If we can be of any further assistance, please do not hesitate to contact us.

[CEYHAN KAYRAN ISCİ]

Thank you for your kind answer, unfortunately, we cant take our dad to abroad (USA). I can only take recommendation through this board and make my dad’s life more comfortable as much as possible.

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