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MDS with elevated WBC

This topic has 2 replies, 3 voices, and was last updated 6 years, 2 months ago by Trudy Elder.

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January 23, 2018 at 11:55 am #34882

Carol Billings
Participant

Hello
I was wondering if anyone has been diagnosed with MDS with elevated White Blood Cell counts? I have very recently had my bone marrow biopsy completed and it looks like they are calling this MDS. However, it seems everything I read about MDS is a low cell count. While my RBC is low and diagnosed as Anemic, my White Blood Cell count continues to run higher than normal. I am very confused as this is all new to me. Any input would be appreciated.

January 24, 2018 at 12:07 am #34887

Cecile Huston
Participant

the only time my white cell count has been higher then normal, was right before I got a really bad sinus infection, Dr. said that was a sign of something going on like an infection, mine has always been below normal which makes me open for infections, I was on antibiotics 4 times last year and already once this year.

January 30, 2018 at 3:53 pm #35683

Trudy Elder
Participant

Hi, Carol –

I was diagnosed with MDS a little over a year ago. My white cell count was also elevated. I had never heard of MDS so I spent a lot of time online trying to figure out what the disease entails. I’ve had chemo treatments (Decitabine) every four weeks since last April and for the last four months, all my blood counts are within the normal range. My local oncologist explained the disease by saying “Your bone marrow is all messed up.” The oncologist treating me at MD Anderson explained about blasts, etc. but I don’t really understand it. This is a wonderful site to learn about MDS.
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