New diagnosis?

[Cindy Ruggles]

My dad was recently “diagnosed” with MDS from his hematologist after a “MDS-specific CBC panel”. Because his platelets are still above 80,000, the doctor has decided to wait to do a bone marrow biopsy until his counts near 50,000 or he has more symptoms. Is this a frequent practice? Everything I have read from the info received from you says he shouldn’t be diagnosed until he has the biopsy. Thanks for any information or referring me to the correct source.

[Anonymous]

Dear Cindy, Thank you for your email with information regarding your father’s health. I would recommend that you take him for a second opinion at one of our Centers of Excellence in MDS. Benefits versus risk analysis should be done with any treatment. Following is a link to our Centers of Excellence worldwide https://www.mds-foundation.org/mds-centeres-of-excellence/. I hope this information helps.

• This reply was modified 7 years, 2 months ago by .

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