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Night Sweats

This topic has 3 replies, 3 voices, and was last updated 5 years, 1 month ago by Paul Dyer.

Viewing 4 posts - 1 through 4 (of 4 total)

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February 28, 2019 at 4:07 pm #45174

Michael Busalaki
Participant

Hi i was diagnosed with MDS about 8 months ago. I am sixty years old and at this time it is only effecting my red blood cells. I have been getting blood transfusions about every 4 weeks when i drop into the sevens. I still feel pretty good i work everyday and workout 5 times a week. The last couple of weeks i have been experiencing severe night sweats about three to four times a week. I don’t see the Dr for another two weeks. My question is this common with MDS does it mean it is progressing. Thank you for any help.

February 28, 2019 at 8:45 pm #45175

Donna
Participant

Hi Michael……..I have been followed for low WBC for several years. My first biopsy showed CCUS (clonal cytopenia of unsignificant significance). I was watch and wait for suspected MDS for about a year and a half. Then my 2nd bone marrow biopsy showed MDS with multi linear dysplasia. I have about 4 mutations that I don’t think are too good. Anyway, to get to your question….I don’t know the answer but I also get night sweats. My doctor does ask me on every visit if I get night sweats, so I imagine that means it has something to do with the MDS. My biggest problem is low platelets and I am supposed to be starting Decitabine after my next visit in April….unless by some chance my numbers are better, then maybe I’ll get another 3 month reprieve.
Donna

February 28, 2019 at 9:45 pm #45176

Michael Busalaki
Participant

Thank you my only problem so far is the low hemoglobin from red blood cell mutation. I get an procrit injection every week i was hoping for a double triple maybe a home run with it, but barley hitting singles. The Doc said next visit he might try a study drug.

March 1, 2019 at 8:35 am #45769

Paul Dyer
Participant

I am 50 and was diagnosed July 2018. At the time I had pancytopenia, all counts low. Night sweats were common for me then, as well as too easy(weight loss), and some fatigue. I worked out several days/week also, as well as a physical job (installing hardwood flooring).
As a result of my mutations (including TP53) I had a transplant in November 2018. Since, the night sweats are gone!
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