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Possible Indolent CMML diagnosis

Home Demo forums Patient Message Board Possible Indolent CMML diagnosis

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Viewing 5 posts - 1 through 5 (of 5 total)
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  • #31696
    Emily Wilson
    Participant

    I have been recently diagnosed with chronic monocytosis and chronic thrombocytopenia and was referred to a very good hematologist/oncologist. He performed a number of blood tests to rule out infection, hep A, B, C, ANA, etc. All those tests came back negative. However, he mentioned CMML so I had a bone marrow biopsy a few weeks ago. It came back with good results (blasts <1%, no dysplasia, or abnormal cells) but I did show increased iron stores in my bone marrow but no sideroblasts. They checked my chromosomes and thank God I have no abnormalities. When I went back for my follow up my Dr. wants to see me every 4 months to check blood counts. He mentioned that if my Absolute monocytes go above 1.5 then I will need to do something and have another bone marrow biopsy. He mentioned that I may have CMML but it could be indolent so he just wants to “watch and wait” for now. He hasn’t definitely diagnosed me yet one way or another. I wish I knew for sure.

    #31699
    Anonymous
    Inactive

    Hi Emily, Thank you for your post. I know this is a difficult situation for you and I would recommend that you go to one of our Centers of Excellence for a second opinion just to see what they think. Following is a link to our Centers of Excellence worldwide https://www.mds-foundation.org/mds-centeres-of-excellence/. I hope this information helps. If we can be of any further assistance, please do not hesitate to contact us.

    #31701
    Emily Wilson
    Participant

    Thank you for the recommendation to obtain a second opinion. There is a center in Seattle that I can check out.

    #31728
    Anonymous
    Inactive

    If you need any help in securing the appointment, please let us know.

    #31988
    Helen Kneubuhler
    Participant

    I have CMML and am anxious to hear your diagnosis,

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