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Sores in mouth/scalp and now LEGS?

Home Demo forums Patient Message Board Sores in mouth/scalp and now LEGS?

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  • #35996
    Jennifer Nola
    Participant

    My mom has been diagnosed with MDS for about two years. Her doctor has deemed her numbers good enough not to go through chemo at this point. She has horrible sores in her mouth (so painful she won’t eat) and on her scalp. This week the sores are on her legs: large, dark purple, painful sores. Doctors don’t know if it is related or not. Has anyone else experienced this?

    #35999
    mdsfound
    Moderator

    Dear Jennifer, Thank you for your post with information regarding your mother’s health. I know this is a difficult situation for you and I would recommend that you go to one of our Centers of Excellence in MDS for a second opinion. She may be having an adverse reaction to one of her medications. For her mouth sores, Biotene oral rinse or Magic Mouthwash Rx can help. Following is a link to our Centers of Excellence worldwide https://www.mds-foundation.org/mds-centeres-of-excellence/. I hope this helps.

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