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Stem Cell Transplant

Tagged: Transplant Successs

This topic has 2 replies, 3 voices, and was last updated 6 years, 9 months ago by David Spicer.

Viewing 3 posts - 1 through 3 (of 3 total)

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July 20, 2017 at 9:47 pm #33539

Jennifer Zellin
Participant

My mom just received her diagnosis this week. We are still waiting on some more genetic data but she is being heavily considered for stem cell transplant. Is there anyone that could share their experience with us? How the process was started, complications, recovery, risks? At this point for us, any experiences shared would be appreciated.

July 22, 2017 at 11:10 am #33541

rar
Participant

Hi,

I had a transplant 3 years ago. At the 18 month point I wrote a brief summary of my experience. It is the 3 post at https://www.mds-foundation.org/forums/search/AG-221/ While I still have GVH without the transplant i had a 4% chance of living this long. My doctors always tell me how well I am doing. I have no regrets.

July 22, 2017 at 2:45 pm #33542

David Spicer
Participant

Many thanks for posting that, rar, and thanks to Jennifer for starting the thread.

My husband, recently dx’d with MDS, may be facing the prospect of a transplant as well. He’s 67 but has the complication of being a 25-year HIV survivor. We live in NC and will be having a consultation at Duke in several days to see what they can offer.

The combination of these two conditions has some pretty scary numbers in terms of survival, but as you’ve happily reminded us there is cause for hope even in the face of complications and long odds. Best wishes going forward!
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