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Steroid-Refractory Chronic Graft-Versus-Host disease (SR-cGVHD) Research Study

Home Demo forums Patient Message Board Steroid-Refractory Chronic Graft-Versus-Host disease (SR-cGVHD) Research Study

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  • #32014
    Anonymous
    Inactive

    QuintilesIMS, a global healthcare research firm, is currently conducting a study about living with Steroid-Refractory Chronic Graft-Versus-Host disease (SR-cGVHD). This research may help improve how the patient’s experience is accounted for in clinical trials for new treatments, and may also lead to interventions designed to better support patients and their families going through the treatment experience.

    Patients 12 years of age and older with SR-cGVHD who meet our eligibility criteria will be invited to participate in a 75 minute telephone discussion with one of QuintilesIMS’ healthcare researchers. The patient does not need to do anything to prepare, other than be ready to describe his/her experience of living with SR-cGVHD. At no point before, during, or after the interview will the patient be contacted to purchase anything or be asked to take any medication.

    Participants will be compensated with a $125 Visa gift card for their time and effort, and may be contacted after the conclusion of the research to participate in an additional follow-up conversation (and will be compensated for their time as well should they choose to participate).

    If you are interested in participating, please contact Rushabh Malde, QuintilesIMS, at 1-917-655-7906, 9:00 AM – 5:00 PM EST.

    #32103
    rar
    Participant

    I participated in the survey. She suggested that you might have some resources for GVHD treatment.

    Ray

    #32118
    Anonymous
    Inactive

    Hi Ray, Please email me at patientliaison@mds-foundation.org. I am happy to help.

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