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Tentative diagnosis of MDS. Help

This topic has 6 replies, 1 voice, and was last updated 16 years, 1 month ago by jga_socal.

Viewing 7 posts - 1 through 7 (of 7 total)

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March 11, 2008 at 4:42 pm #20341

Marvin
Member

What now. Could I really have it with platelets
at 94000, wbc 3100, rbc 12.7

March 11, 2008 at 5:59 pm #20342

Neil
Member

Did you have a bone marrow biopsy?
MDS cannot be accurately diagnosed without a bone marrow biopsy.

March 11, 2008 at 6:09 pm #20343

Marvin
Member

Yes; I had a BM biopsy last Fri. I get results this Fri. My numbers seem pretty high, except for the platelets.

March 12, 2008 at 3:06 am #20344

choijk
Member

It might be MPD. Myeloproliferative

March 17, 2008 at 5:08 am #20345

jga_socal
Member

With all 3 counts below normal, even if only by 10-20%, something is amiss. If you have MDS then it was caught early. So how did the biopsy check out? June, I think the proliferative disease would result in higher than normal counts, right? I hope your Dad is doing well on Vidaza. btw is your dad a candidate for a mini transplant? the nurses in the bmt unit where I lived in January talked about some 70+ year olds who had it done successfully.

March 17, 2008 at 11:03 pm #20346

Marvin
Member

Bone marrow biopsy came back Negative, and all
three cell types went up some, but still low. Dr. now thinks its “evolving MDS”. Anyone ever hear of that?

March 18, 2008 at 5:51 am #20347

jga_socal
Member

The other thing to look for on a CBC is labeled MCV. This number indicates the average size of your hemoglobin. If the number is above the normal range of 81-99 then it could mean MDS. Apparently the Hgb cells that actually make it from blast to maturity are misshapen and larger than normal. When I was diagnosed with MDS in Jan06 my MCV was 110. I’ve never heard of evolving MDS.
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