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Thalidomide or Revlimid [Del 20q]

This topic has 19 replies, 1 voice, and was last updated 19 years, 2 months ago by txnmomma.

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January 31, 2005 at 6:41 pm #3471

sgoodman
Member

Hello. I am on Thalomid now (at 100mg per day since November) and it is working well. The side effects are manageable. I have MDS-ra and myelofibrosis. I am 41.

January 31, 2005 at 6:44 pm #3472

sgoodman
Member

To add to my prior post, I was on revimid for 3 months and it had no effect.

February 1, 2005 at 6:38 am #3473

vanguardsheet
Member

Thank you for yr response, Sgoodman.

My Dad started on 50mg Thalidomide last week. But the counts remained the same. This week, the doc upped it to 100mg. My Dad has complained of having cramps in his stomach and pain in his feet. Not sure if these are side effects of thalidomide.

February 10, 2005 at 9:24 am #3474

txnmomma
Member

Hi there..

My dad was on Thalidomide for approx 2 months. For him, the side effects were horrible. They showed sligh increase in his counts.. the WBC and also the HGB.

He was taking 200mg a day.. at night. The sleeping part helped him tho. After being hospitalized for side effects, his dr lowered the dosage to 50mg and it still was too much for him.

The side effects were too evil for him .. to continue the treatment. The optical nerve was inflammed causing double vision, he was sick all the time [bronchitis], fever, sleepy, cold sweats, etc. Basically, the side effects were too much for him. He is off it now.. and taking something else.

Hope your dad does well with the Thalidomide. For some its works, for others it doesnt!!

February 10, 2005 at 9:27 am #3475

txnmomma
Member

Quote:

complained of having cramps in his stomach and pain in his feet. Not sure if these are side effects of thalidomide.

My dad had the same complaint.
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