MDS is a bone marrow failure disorder
MDS is a blood cancer
Learn More >

Welcome to the MDS Patient Message Board Post New Thread

Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

Tuesday is a BIG DAY for all of us!

Home Demo forums Patient Message Board Tuesday is a BIG DAY for all of us!

Viewing 5 posts - 1 through 5 (of 5 total)
  • Author
    Posts
  • #17401
    SandyB
    Member

    On Tuesday, March 20, blood cancer advocates will descend on Capitol Hill and urge legislators to make blood cancers a priority; with more funding to find cures and support patients. You can help! Please send a message to your senator and representative. (You can do this by following the link below).

    Tell them to meet with Society blood cancer advocates and support the needs of patients and their families. And urge them to visit a special program of patient messages from around the country Tuesday evening in the Hart Senate Office Building.

    A draft message is available here: (Copy and Paste link into your browser)

    http://action.lls.org/c.lkL1J8MLKrH/b.14…432555&aid=8249

    Simply enter your zip code and you’ll be directed to the draft letter and the means to e-mail it directly to your representatives.

    Thank you for your time and support!

    The persons on this forum have been very helpful in bringing this day about, by the sending of the letter from the http://www.FightMDS.com website.

    Please help keep the momentum going. We are getting closer to receiving help.

    #17402
    riley
    Member

    Thanks for sharing this, Sandy. I just sent the letter. I appreciate the heads-up — I wouldn’t have known about this otherwise.

    Nicole

    #17403
    SandyB
    Member

    Thanks Nicole! If you could share this with everyone on your email list, we could generate a lot of support.

    #17404
    Terri
    Member

    Sandy I did go to the website when you posted Hope this helps we need all the research possible

    #17405
    SandyB
    Member

    Terri:

    Thanks so much for responding to the support letter. I have heard from others that they had well sent their letters as well.

    Thanks again.

Viewing 5 posts - 1 through 5 (of 5 total)

Register for an account, or login to post to our message boards. Click here.

  • You must be logged in to reply to this topic.

Login

Login

Search Forums

Review answers to commonly asked questions or get answers to your questions from an MDS expert