Update

[Terri]

Our Roller coaster continues. We figured Bob’s subdural bleed was under control he was walking and getting around better. Then his whites started elevating Dr wanted to get him back on the vidaza as soon as possible since when he was admitted to Hospital for the bleed he got off sschedule. He had one round. White came down some then skyrocketed again to 54. Went in thurs to start his round of Vidaza and his Hgb down to 6.5 from 9.1 a week earlier They did an emergency transfusion of two units, a BMB as well to see what the disease is doing since no signs of bleeding anywhere, Its not the brain, Nothing in the urine or stool, No nose bleeds or mouth sores.
We go Monday for CBC if counts are low again after the 2 pints They will probably admit him. The BMB results will not be back until Tuesday.
We can use some prayers and thank you all for the support.

[Jerry]

Terri …

As always, Debbie’s and my thoughts and prayers are with you … Bob is about my age (62) and seems to be going through so much more … we feel for you both … Best wishes ….

Jerry

[patti]

Hi Terri,

Hang in there. I so understand the roller coaster. You are quite a rock. Praying for you and Bob. Please keep us posted so I can keep my prayers specific for you both.

Take care.

Patti

[Engel]

Terri,
We are praying for you and Bob, will be at church tomorrow and light a candle as well. Only a month ago I thought I would lose my husband after his MDS became AML and we the doctors help and God watching over us all turned around and my husband is in remission. We pray the same will happen to Bob and to all the great people on this forum.
Gloria

[Caroline]

Terri,

My prayers are with you and Bob as always.

Blessings,
Caroline

[Terri]

Thank you all, Engel what treatment did your Husband go through to get to remission.

[eve]

terri

just got back from a much needed long weekend away from the pressures of home and was sad to read that bob is having problems again

my prayers are with you and bob -hoping he gets through this latest crisis and starts feeling better quickly

eve

[Terri]

Well One visit down, Had Bob’s CBC this AM Whites down from 57 to 38, His HGB hung in there at 8.9 after the two units last Thurs when he was down to 6.5. Plts 32 but that could be off a little.
We were excited. Now just tomorrows appt for the BMB results. Dr feels everything going on is the underlying MDS and not that bob is bleeding anywhere. So we will see, He said that the BMB was not dry which was a good sign when the BMB or aspiration is dry it is a sign of packed cancer cells. Did not know that.
Will keep all posted

[Engel]

Terri,
You asked how my husband got into remission. His MDS turned to AML and he spend 5 weeks in the hospital on chemo ara-C, had a heart attack and slight stroke, but all worked out well. He is now on Vidaza for his consolidation rounds and although his counts go down some they still stay normal. The reason for the Vidaza is so that all will stay well and AML will not come back. Our prayers are with you and Bob, have faith all will turn out well. Blessings, Gloria

[sarah]

Terri, last 3 BMB’s Charlie had were all dry tapped.They were unable to aspirate. We knew that was not good.

[Terri]

Bone Marrow Biopsy/ Aspiration came back and the disease has not Progressed but His marrow was bone dry of Iron. So he Started the Vidaza again today and tomorrow in addition to the Vidaza he will get IV of Iron (Feracet) once a week for the next six weeks. We were very happy that the Blast, etc etc are not worse and that the Disease has not gotten any further or progressed to aml.
Will see how he continues with the Counts and the Vidaza.
Thank you all as always for your support.
God Bless, my prayers are with you all.

[eve]

terri

thanks goodness there is no progression of the mds

eve

[Caroline]

Terri,

Great News !!! You must feel very relieved. I am happy for you.

Blessings,
Caroline

[sarah]

Wonderful news Terri. What a blessing.

[lynette]

Great news Terri–keep the faith!!
Lynette

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