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Vidaza

This topic has 5 replies, 1 voice, and was last updated 13 years ago by satins.

Viewing 6 posts - 1 through 6 (of 6 total)

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February 1, 2011 at 11:05 pm #23070

franb rars dx 12/06 age 57
Participant

Hi Everyone,

I am starting Vidaza next week. Dr. said it would be administered subcutaneously in my thigh or abdomen, can anyone tell me a little more info about the procedure, I have RARS transfusion dependent. Just want to know what to expect, is it very uncomfortable? Would appreciate your responses.

February 2, 2011 at 1:47 am #23071

Mary4Mike
Participant

My husband did Vidaza in this manner several years ago. The injections didn’t really hurt, but the injection sites became sore and the skin peeled. They rotated the site each day. As you can see from my signature, Mike had MDS RARS and this was the only chemo that produced a postive response. He was transfusion free for 15 months and his response was immediate….I believe he may have had 1 transfusion after starting and then no more. When it stopped working for him that was immediate also. Then he tried Revlimid (did nothing) and Dacogen which produced severe side effects with 3 hospitalizations. The last thing he went for was transplant and for him it was the best decision. He has no MDS and he says he has a feeling of well being again.

I wish you all the best with Vidaza. Let us know how it goes!

Mary

February 2, 2011 at 1:55 am #23072

Mary4Mike
Participant

Narf,

You might also want to check out MarrowForums. There are threads on there of people currently on Vidaza and sharing their experiences.

There seems to be more activity there right now.

Give it a try!

Mary

February 2, 2011 at 11:12 pm #23073

franb rars dx 12/06 age 57
Participant

Hi,

Thanks so much for taking the time to respond, I like to have some idea what I’m getting into. I was on Revlimid, it worked for 4 months and then all my counts took a nose dive, and transfusions became more frequent. Anyhow, will keep you posted. I’ve checked the forum in the past and you always have an encouraging word, thanks so much and so glad to hear Mike is doing well!

Fran

March 29, 2011 at 1:36 am #23121

franb rars dx 12/06 age 57
Participant

Hi Mary,

Doing ok after 2 cycles of Vidaza. Still getting transfusions, however, they are a little further apart, so we’ll see. After last cycle, have two lumps in belly from the shots, very painful. Did Mike experience those and if so, do you mind letting me know what if anything helped?

Hope you & Mike are doing well. thanks!

Fran

March 31, 2011 at 8:56 am #23122

satins
Member

Hi all

My name is satin and New members.

Nice to meet you.
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