your experience with the ventilator
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March 31, 2006 at 3:22 am #12491Brenda PMember
My dad had to be intubated yesterday because he was going into respiratory arrest. His AML is pretty bad: 50% blasts in the blood at a count of 37,000 or so. He needs 100% oxygen–maximum ventilation support.
He held on until my brother got here and we all had a nice afternoon together. Then he kicked us out and 30 minutes later I got the call. I got to see him and tell him he’d be ok and kiss him before they tubed him.
Two questions: when do you decide to pull the plug and let him go? I know dad doesn’t want to live if he is hooked up to a machine and not conscious. And I don’t want him to wake up and realize where he is and be afraid. But it’s so sad!
Also, for anyone who’s been on a ventilator, did you dream? Did you hear?
Thank you, this is a wonderful forum.
March 31, 2006 at 10:08 am #12492pattiMemberBrenda,
I think that question really needs to be answered by your dad. If you know he doesn’t want to live hooked up to anything then the best thing you can do is ask them to remove the ventilator and let nature take its course. They can provide as much pain relief as he needs to keep him comfortable. I can’t answer your other questions about a ventilator.
I’m sorry you’re going through this right now. I can’t imagine how difficult it must be.
Take care.
patti
March 31, 2006 at 7:08 pm #12493rileyMemberI’m sorry your father, you and your family are going through this. It’s so hard.
My father was on a ventilator twice during the course of his illness. He had MDS (not yet AML) and had sepsis both times. Each time, he was on the ventilator for a week, and he started at 100% oxygen both times.
The first time, the doctors told us they thought they could get him off the vent fairly quickly. The second time, they told us his odds of making it were 50/50. He made quick progress each day, so within a few days we were fairly sure he was going to be ok.
My father remembered hearing my mother’s and my voice, but he didn’t remember anything we had said to him. He did have very good dreams. In fact, he either dreamed of (or saw) angels both times. His dreams were very comforting to him — he definitely wanted to see those angels again.
My father wasn’t scared when they decreased his sedation and he woke up. He thought he’d just been sleeping. He couldn’t believe a whole week had gone by and so many people had come to see him and he didn’t recall any of it. It seemed like not being able to account for that time was the most upsetting thing to him.
I hope your father’s condition improves. I’ll keep all of you in my prayers.
Nicole
March 31, 2006 at 7:41 pm #12494Brenda PMemberDad passed away when we took him off the vent today. It was a good decision, the only one we could make, even though it was hard for us. He seemed to be sleeping (ok, snoring a bit–) but I know he was ready.
March 31, 2006 at 7:48 pm #12495pattiMemberBrenda,
I am so sorry for your loss. It is hard to say good-bye. I am glad you know in your heart it was the right thing to do. That is one of things that makes these difficult decisions more bearable. If that’s even possible. Doing the right thing is not always the easy thing. May your memories comfort you over the weeks and months to come.
God bless,
patti
March 31, 2006 at 11:53 pm #12496eveMemberbrenda
thoughts and prayers are with you and your family at this most difficult time
eve
April 1, 2006 at 1:36 am #12497shirlsgirlMemberDear Brenda,
I’m so sorry. My thoughts and prayers are with you and your family…
Jody
April 1, 2006 at 2:19 am #12498EnsneeMemberBrenda, I’m so very sorry you’ve lost your dad. Sending many prayers and hugs to you and your family…
Esme
April 1, 2006 at 10:09 am #12499rileyMemberBrenda,
I’m very sorry for your loss. My thoughts and prayers are with you and your family.
Nicole
April 1, 2006 at 12:55 pm #12500JimMemberBrenda,
I’m sorry for your loss but you did the right thing. I hope my family will do the same for me when my time comes.
JWApril 1, 2006 at 6:08 pm #12501gemloyearMemberBrenda, My sincere sympathy for the loss of your father. May you find peace and comfort at this difficult time.my prayers are with you and your family.
EllieApril 1, 2006 at 7:50 pm #12502JAGGYONEMemberBrenda,
My deepest sympathy to you and your family during this difficult time.
Stay strong and try to find solace in knowing that your Dad isn’t suffering any more. He will live on in your heart forever and be with you always.Judy
April 2, 2006 at 2:27 pm #12503CarolineGMemberBrenda,
I am sorry for your loss. I will keep you and your family in my thoughts and prayers.
Blessings,
CarolineApril 3, 2006 at 4:32 am #12504Brenda PMemberThank you all. We’re requesting donations to this foundation in lieu of flowers. Everyone has been so helpful, and we need to find more options to treat this horrible disease.
April 3, 2006 at 4:47 am #12505SandyBMemberMy family’s prayers are with you and your family. Know that your dad is feeling much better.
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