MDS is a bone marrow failure disorder
MDS is a blood cancer
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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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Viewing 15 posts - 1 through 15 (of 73 total)
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    Posts
  • in reply to: Two Years Today #8271
    April
    Member

    Hi Terry ~ I haven’t been here for a while but to see this post really put a smile on my face! That is just great about Bob! You are such a strong person and you have no clue as to how much you and everyone else helped me thru the tough times with my mom. I will keep praying for you and that the Lord will keep You and Bob strong for many many years to come!

    in reply to: Greg's Mom #7148
    April
    Member

    Please let Greg know that my prayers are with him and you and your family.

    in reply to: Doctors Visit #5641
    April
    Member

    That is great news Terri! I will keep praying for you and Bob! Praise to the Lord above for answering your prayers!

    in reply to: New here and my story…… #5615
    April
    Member

    Butch ~ I will keep you and her in my prayers. This is a great place to be for venting, advice, etc. Please keep us posted as to how she is doing.

    in reply to: Billy's Donor! #5646
    April
    Member

    That was a great story! It gave me goosebumps. For someone to take the time and do this for you is just amazing!!! And they do look a lot a like!!!

    in reply to: Checking In #5500
    April
    Member

    It’s good to hear from you Barbara. I have been thinking about you a lot and wondering how you are doing. I will keep you in my prayers.

    in reply to: some good news #5385
    April
    Member

    That is great news Suzanne! I will keep praying that you stay Cancer free!!!!

    in reply to: Mom's Biopsy Results #5396
    April
    Member

    Greg ~ You and your family are in my prayers.

    in reply to: Update on daughter Holly #4932
    April
    Member

    That is wonderful!!! cool

    in reply to: Ron and Barbra #5031
    April
    Member

    Barbara ~ I am so sorry to hear about Ron’s passing. I know that there is nothing I can say to take the pain away, but I wish I could. You and your family are in my prayers.

    in reply to: Update on Mom #4842
    April
    Member

    Well, she’s not doing any better. She didn’t get out of bed all day yesterday or today and hasn’t ate/drank a thing. She would hardly take her meds. Today she has been thrashing around in the bed because of the pain in her legs. Her pain patch was changed today and she has had 3 pain pills in the last 4 hours. She is just hurting so bad…We are going to talk to Hospice about an IV for her just so he can be comfortable. I will going over there this evening so I will let you know tomorrow what tonight brings for us…

    in reply to: post for B. Greene #4855
    April
    Member

    Please let Barbara and Ron know that they are in my thoughts and prayers.

    in reply to: late stage symptons #4848
    April
    Member

    My mom-in-law was in a nursing home and she did not do well there either. She didn’t eat because she hated the food. We would have to take food to her that way we knew she would eat. Mom ended up with AML because of the MDS that she had. She also opted for no treatment just like Donna’s mom. She had a good couple of months but she was put in the hospital in December with an infection, pnemonia, etc. She ended up having a heart attack while she was there because of all the meds she was on. She finally decided not to receive anymore blood or platelet transfusions. Her last transfusion was on January 25th or 26th and she was doing ok up until about 2 weeks ago. She is now swelling and unable to get out of bed or hardly talk. She is not taking in any fluids or eating. She just wants to lay there…It’s so sad to see..

    But like everyone has said, each person is totally different..but this is what we are going thru right now…I hope it helps some…

    My prayers are with you and your dad!!!

    in reply to: Recent BMB #4822
    April
    Member

    Marsha ~ That is GREAT NEWS!!! I’m so happy for you. You have come a long way baby!!!! Keep away from those nasty germs as much as you can!!!

    in reply to: Mom has CLL #4835
    April
    Member

    Sad ~ I’m not sure about the blisters or CLL, I just wanted to let you know that I will be praying for your Mom and You!

Viewing 15 posts - 1 through 15 (of 73 total)

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