Forum Replies Created
-
AuthorPosts
-
Davea
MemberAll,
Don and Marsha your advice will be taken! I am very fortunate that my wife is a Registered Nurse and I’m sure she’ll keep an eye on me as well. I’m now on day + 34 or 35 and just received my counts for today.
WBC – 4.9
Plt – 227
Hgb – 89We’re very pleased with these counts!
MemberAll,
It is now Day + 31 since my transplant. WBC at 3.0,platlets at 174 and hgb at 89. Hopefully will be going home tomorrow. Was released from hospital 10 days ago but had to stay in the city close to the hospital for check ups every second day.
Cheers and God Bless,
Dave A
MemberDoreen,
I’m on Day + 13 of my bone marrow,MUD transplant and doing well. My day -6 seems so far away now. So time will move along very quickly, it has for me anyways. Take each day as it comes and forget about the restfor now.
Good Luck and we’re praying for you.
Dave A
Memberdanz,
Are your counts up to normal now and was it the WBC that came up first? My WBC is still at 0.1 and I’m on day + 11. Dr. says it’ll take a few days yet.
Dave A
MemberEsme,
I’m at the QEII in Halifax. You couldn’t ask for better care. Day + 6 and counting.
Dave A
MemberAll, It’s now day + 5 and I’m still feeling OK. My mouth is becoming very sore but I’m still able to eat. Dr. assures me that will change in a coupleof days, we’ll see. For interest sake I will post my current blood counts.
WBC – 0.1
Hgb – 81
Platlets -23
I will receive 2 units of RBC tomorrow. I really appricate all the kind words and encouragement.
Thanks to all, Dave AMemberThank you everyone for your thoughts and prayers. I am now admitted to the hospital and will receive my hickman line tomorrow. Chemo will start on Sunday followed by 3 days of radiation. Transplant will take place on the 29th.
God Bless.
Dave A
MemberSarah,
You can learn more about cordblood transplants by checking out the following link http://www.nationalcordbloodprogram.org
You can also contact:
Steve Sprague
Cord Blood Crusader
Staten Island, NYI believe he is one of the first adults to received a cord blood transplant. His e-mail address is spraguecml@aol.com
MemberJocelyn,
I’ve been dealing with MDS here in Canada for the past 2 years.I’ve found that many of the drugs being used for MDS in the US are not available in Canada. My DR. had tried to get a couple of different drugs but couldn’t.
Dave
MemberColleen,
As you can see it varies from person to person. My understanding is the sooner the transplant is done the better chance you’ll have. In my case none of my siblings matched so it took almost 1 1/2 years to find a suitable donor. I found out on Jan. 12th and was given 4 weeks to make up my mind. My choices were to have the transplant soon or stay the course which would make me ineligable for a transplant within a year or so.This being said, everyone is different and the Dr’s may want to monitor your husband’s condition for a few months before a decision is made on a transplant.
MemberRon, I’ve been on neupogen .5 ml every 2nd. day since July 2003.It has kept my WC in the normal range since then. I self inject with no know side effects. Dave A
MemberCollene, Hi, sorry to hear about your husband’s diagnosis. I am from Nova Scotia and will likely be getting a transplant in Halifax some time in late March or early April. My blood counts have been low for almost 2 years now. When my Hgb. gets to the low 70’s I receive 2 units of blood, usually every 4 weeks. When diagnosed, my plts. were at 30 and have dropped as low as 6. Plt. counts have remained between 14 and 20 for the past several months since being put on Cyclosporine. The BMT Dr’s name in Halifax is Dr.Couban. I’ve heard some good things about him. You’re husband is fortunate to have a sibling bone marrow match. Dave A
MemberJimBob, Wishing and praying for good results on you’re recent test. Dave
MemberBill,sounds like you have an excellent chance at finding that perfect match. After almost 2 yrs. they’ve finally found a match that will work for me! If everything goes as planned my transplant will happen in late March or early April. Keep us up to date on your progress and I’m praying for nothing but good results for you. Did the Hutch give you any current success rates for BMT on MDS patients? Just curious to compare them with what my transplant Dr. told me. Dave A
MemberJoannie,
I notified them yesterday that I want to go through with the transplant. Yes it will be Dr. Coubin doing the transplant and I’ve also heard some great things about him. The transplant will probably happen in late March or early April. I’m not sure how long I’ll be in the hospital. Guess it all depends on how soon a person recovers. Normally I believe it’s 3 to 4 weeks and then I’ll have to stay in the city, close to the hospital for awhile. Great to hear from you. Dave
-
AuthorPosts
