MDS is a bone marrow failure disorder
MDS is a blood cancer
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  • in reply to: Help with Myelofibrosis and Vidaza #2628
    Jag2112
    Member

    Thanks Suzanne.

    Can anyone suggest some centers of excellence in the New Jersey area? Is Mt. Sinai the only local one available, or are there other options?

    Thanks again,

    John

    in reply to: Help with Myelofibrosis and Vidaza #2625
    Jag2112
    Member

    Thanks for responding, Eve.

    I don’t believe my dad’s doctor is very experienced dealing with patients with MF or MDS – and he has hinted to that fact on several occasions.

    He did refer us to Dr. Fruchtman of Mt. Sinai Medical Center in NYC. Dr. Fruchtman is supposed to be an ‘expert’ in the field, but when we met with him some months ago, I was less than satisfied with his approach and his dismissive behavior.

    In any case, thanks again for responding. We’ll see what his next BMB uncovers after which we may very well attempt some treatments on Vidaza…

    Oh – you mentioned your dad has had 14 treatments… Is that 2 months worth? I was told that Vidaza is taken 7 times in 7 days each month.

    Is that your dad’s schedule as well?

    -John

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