Hi Andrej,
sorry to hear about your dad’s condition.
You won’t know anything about my dad’s story as my last post was in 2003, I believe.
My dad was diagnosed with MDS in 1996 (RARS), became transfusion-dependant in 2000, had a mini-transplant (brother a perfect match) in 2002. The mini-transplant improved his condition – but after a few month, his cells took over again – his RARS transgressed to AML in spring 2003. Had a bmt in June 2003 – he passed away 2 months later as the cells didn’t engraft. He was at a German centre of excellence in Frankfurt/Main.
As you are considering a transfer to Germany I just wanted to tell you that the university hospital of Dresden has a good reputation for bmts. (Although you might know that already)
The one to contact is Prof. Ehninger: ehninger@mk1.med.tu-dresden.de.
All the best to you and your dad
Jutta
