Forum Replies Created
-
AuthorPosts
-
KATHY1
MemberChristina, My parents continued to drive to Florida every winter for about a month. She even gave herself her Procrit shots.
Kathy
MemberDear Sad,
Still praying for that miracle for your dad. Stay strong.Kathy
MemberHelen,
I also wonder about the lungs. My mom passed away after her first round of Vidaza because of something in her lungs. We never found out exactly what it was because her platelet count never went high enough for the doctors to go in and find out. It’s probably because people with MDS along with being treated with Vidaza are more susceptible to infection. Seeing a nutritionist and taking supplements like Terri says probably does help. If mom were still here I’d definitely tell her to see a nutritionist.When you say going down, in what way? His general health? His counts? His attitude?
Hoping for the best for your husband.
Kathy
MemberWishing you and George all the best. Continued prayers.
KathyMemberSarah,
I too am sorry for your loss. While you know your father’s pain and suffering has ended and he is in a better place the pain you feel in your heart is so real. Just know that it does get easier with time. You are in my thoughts and prayers.Kathy
MemberJody, Glad to hear your mom is doing well. Have a dreat week. You deserve it.
KathyMemberHey Marsha, Welcome back! I was hoping we’d hear back from you. So happy things seem to be going well for you. Take it slow. We look forward to hearing more good news from you. You go girl.
KathyMemberDear Sad, My mom was in the hospital for 10 days before she passed away. From day one the tried to get us to sign a DNR. We felt she had more fight in her and wouldn’t do it. The doctor finally got her to sign one at around day 5 herself when they took her off the ventilator. Still she fought. She fought until my sister made it up from Virginia and fought a couple days after that. The day she died was the day I brought pictures of all her grandchildren who were not able to visit her. I think it made her realize, though I know she wanted more time, she led a very full life with six children (all with her) and thirteen grandchildren.
Is there something or someone your dad could be waiting for. Or, maybe he does have some fight left. I will pray for a miracle for you.
Kathy
MemberAlexa, Glad to hear you have a new outlook. Good for you. I believe that will take you a long way. Stay positive and keep us informed on how you’re doing. Good luck (on your exams too).
Kathy
MemberJohn, So sorry for your loss. Thanks for the info on the book. I might just give it a read. You’re in my thoughts and prayers.
Kathy
MemberSarah, I’m sorry you have to go through this. So many people have so many different reactions to the drug. Unfortunately it does not surprise me. My mom died after her 1st round of vidaza. Her counts also did a downward spiral. One day she went for her Procrit shot they checked her counts, she was supposed to go for a transfusion the next morning (the probably should have gone that day). When my dad went to get her up she could not move and was in an incoherent state. She went to emergency, stayed in the hospital for about 10 days and passed away. Before she started on Vidaza no one new she was sick. She would tell people she had a blood disorder that needed to be maintained. Unfortunately it works for some and not for others. Strange thing is in the morning her oncologist came in with the good news that her counts were finally starting to go up but it was too late for her lungs.
Kathy
MemberEve, It’s hard not to panic isn’t it? This disease is so confusing. Glad to hear your a little more settled. I hope your Dad continues to do well.
KathyMemberDear Sad, I too am sorry for what you are going through. Like Donna said the hardest part is watching them suffer. The times that I cry the hardest for mom are when I think of her final days in the hospital. If it is truly meant to be I hope it will be quick and painless. Your in my prayers.
Kathy
MemberAndrea, Great to hear more good news. Let’s keep it going.
Kathy
MemberApril, I know what you mean. The times that I cry most thinking about my mom are when I think about her last days in the hospital. Continued prayers.
Kathy
-
AuthorPosts
