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KATHY1
MemberThanks to all of you who replied. The thought of possibly having to go through all this again is so scary. My aunt and mom were very close and she has no children of her own. Her husband passed away so we are her family. So far she’s well and it may never go that way but MDS is always on my mind. Thanks for your help.
Kathy
MemberApril, That’s too bad about Rob’s family. You’ve written about them before haven’t you? With everything that’s been happening you’d hope they’d be able to settle some differences. At least he has you and your family. Will continue to keep you in my thoughts and prayers. Stay strong.
Kathy
MemberWoo Hoo! Let’s keep the good news coming!
Kathy
MemberBarb, Another reason this disease is so complicated-everyone is different. Like Deb’s mom, my mom would get transfuses around 8 and she couldn’t tell she neede them either. She would just say she was feeling a little tired.
Kathy
MemberApril, I feel so sad for all of you. You will all be in my thoughts and prayers. I’m glad your husband has so many siblings. I also come from a family of 6 and when my mom passed away in October we were all there for each other. It seemed when some were falling apart the others were there to keep it together. I hope your husband’s family is as close and they are there to support each other. God Bless.
Kathy
MemberAlexa, You can only feel what you feel. Don’t apologize it’s your right. We all have moments, hours, or days like that. This is a great place to unload. I’m sure it is very difficult but I truly believe a positive outlook and good spirits can be the best medicine. My mom lived with MDS for over seven years. I know it doesn’t sound like much but I do mean lived. Her illness did not stop her from doing whatever she wanted to do. She honestly lived until she died. I know you are much younger than she was but don’t forget there is much more that can be done at your age.
Wishing you all the best.
Kathy
MemberKate, Sorry George has not been well. Keeping you both in my thoughts and prayers.
KathyMemberKathy,
Glad to hear your Dad’s doing well so far. Wishing your dad and Carrie’s continued success.
Kathy
MemberTerri and Bob,
Congratulations! Wishing you all much joy with your new baby boy.
Kathy
MemberChristina, When my mom was in the hospital she had something in her lungs which the doctors couldn’t scope because her platelet count was too low. She was also had trouble breathing and was on a ventilator though. I’m hoping your dad’s counts go up so among other things they can do a scope on his lung to find out what that spot is. Let us know what happens. Wishing you the best.
Kathy
MemberNeil, Sorry to hear your mom is not doing well. God Bless her for living so many good years.
Kathy
MemberThanks to all of you who replied. Just want to let you know Dad seemed much better the day after I wrote and on his birthday. I guess he was just having a few really tough days. It’s understandable but it breaks my heart. Anyway, thanks for the advice. Jody, I did check out that website. I also asked him if he was taking any medication for depression. As I suspected he does not want to take any more medication. For now we’ll just keep a close watch. With time I’m sure it will get easier.
Czaring, your right just after mom passed dad said to my sister I always thought I’d go first. My sister told me she thought to herself “mom thought the same thing.” She did too, no one ever knew she was sick. She had such spirit and my dad seems so old and slow 9especially since he broke his hip). Anyway, I’m rambling again, just want to say thanks again.
Kathy
MemberCarrie, Congratulations! May 2005 bring lots more good news.
Kathy
MemberJody, Glad you’re able to get away. My mom never stopped travelling. She just made sure she knew if where the nearest hospital was. She would sometimes get bloody noses that wouldn’t stop bleeding.
Kathy
MemberSad, I hope you get the answers you need and deserve. If not, may be time for another opinion. Wishing you all the best.
Kathy
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