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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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Viewing 15 posts - 31 through 45 (of 246 total)
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  • in reply to: vidza just stopped working #10281
    Kathryn
    Member

    Lisa, thanks for your thoughts…

    Janet said it perfectly, “I MUST do my best to go on living well because I would be letting them down otherwise.” There isn’t a day that goes by that I don’t think about my dad, who he was and what a wonderful and positive influence he was, not only on my life, but on others that he touched… I just try not to go “there”… It has been a huge loss. My daughter had knee surgery the day before Thanksgiving… She cried for her Granddaddy when she woke up. It was heartbreaking because he’s been there for every surgery. We went by his grave after we left the surgery center and it really hit home with her that he was gone. Quite sad…. Aside from that we talk about him being on a beautiful holiday at the beach… A survival tool…

    When I read the posts on this board, it really makes my heart ache… Though for a short time, I was there, and as they say, “hind sight is 20/20″… This board was such a huge support to me and I will do what I can to give back…

    How is your father doing? I hope that things are looking up.

    Take good care… I’m sending positive thoughts your way.

    Kathryn

    in reply to: vidza just stopped working #10278
    Kathryn
    Member

    Hi Lisa, my father was on Thalidomide & Vidaza. When that began to be less effective, the doctor switched him to Trisonex. There was a period where he was still getting some residual effects from the Vidaza. Apparently it is commonly used for elder patients when there is no other alternative. He was doing alright on that… When you read about it, I suppose as with any medicine, it can be a little worrisome, but he never had any severe reactions on it.

    Best wishes to you and yours,

    Kathryn

    in reply to: Need More Prayers #10219
    Kathryn
    Member

    Caroline, you and your dad are in my prayers. I know how draining that rollercoaster can be. Keep the faith. In regards to your job, it is interesting how things work out….. We had plans of moving back to Florida…Had my house sold, I would have moved and missed out on some very valuable time w/ my father…. Sometimes blessing are in disguise!

    Take care,

    Kathryn

    in reply to: Qucik Update #9953
    Kathryn
    Member

    Terri, I have been thinking of you and Bob so much lately. I hope that he is doing better. You take such good care of him and that is such a blessing. I hope that you too are hanging in there okay.

    I am wishing you & yours a wonderful Thanksgiving.

    With love and prayers,

    Kathryn

    in reply to: My daddy passed away #10164
    Kathryn
    Member

    Robin, I am so sorry for your loss… I am wishing you peace.

    Kathryn

    in reply to: Vidaza and Heart – URGENT #10238
    Kathryn
    Member

    Hey Margaret, my father was on Vidaza w/ heart issues – congestive heart disease, thickened arteries. He didn’t have any real problems though while he was on it… at most, irregular heart beats….

    Please feel free to ask any questions. I will answer as best I can.

    Kathryn

    in reply to: have a good day #10242
    Kathryn
    Member

    Happy Thanksgiving to you too!

    My best wishes for a very wonderful day to you & everyone.

    xo,

    Kathryn

    in reply to: Nadine lost the fight. #10255
    Kathryn
    Member

    Jon,

    Oh,…..my heart aches for you. I am so sorry for your loss.

    Keep her memory alive and close to your hearts…May they bring you peace.

    You and your family are in my prayers.

    Kathryn

    in reply to: Hello #9769
    Kathryn
    Member

    Hey Don!!! That is so great!!! Being proactive is good food for the soul!

    You know my best wishes are with you!!!

    Kathryn

    in reply to: Update on Hans #9568
    Kathryn
    Member

    Esme,

    sending positive thoughts & best wishes your way. You and Hans are always in my prayers.

    Please keep us posted.

    Hugs to you both,

    Kathryn

    in reply to: Hurricane Wilma #9490
    Kathryn
    Member

    Ellie, my cousin lives in Fort Myers near Sanibel Island. She said that Wilma was worse than Charley because the wind was so bad. Her home only had some landscaping & siding damage though, so they are counting their blessings. She said that overall the city held up okay. Part of the problem w/ her location is that Sanibel and the barrier islands lost a lot of their vegetation to Charley, so there isn’t as much protection. I read that power there could be out for a couple of weeks. I haven’t heard or read anything about Pine Island, so hopefully they fared well. We were looking at moving to Bokeelia/ Pine Island or Sanibel if our house here had sold. After Katrina we were having second thoughts anyway…

    I have been thinking about Terri & Kate and praying for their safety. I’m looking forward to seeing their posts!

    Best wishes,

    Kathryn

    in reply to: BMB Results #9467
    Kathryn
    Member

    Hi Terri, I am so glad to hear that the doc. gave you guys some good news!!

    I’m thinking about you both & wishing you safety through the upcoming storm.

    Kathryn

    in reply to: CMML Question #9004
    Kathryn
    Member

    Caroline,

    you are an angel. I’m glad that you have made such an effort to be involved regardless of the opposition. My sister and I weren’t “allowed” and having someone to advocate is vitally important. I’m so sorry that both of your parents so ill.

    Seems that there are very few “outsiders” who will listen. Besides a dear friend whose mother has lung cancer, this forum has been a Godsend!

    You know that we are here for you always… We all have big ears & large shoulders! smile

    Love,

    Kathryn

    in reply to: Touching base/ Light the Night…. #9226
    Kathryn
    Member

    Wow, that is so great Terri!! You go girl!!! laugh We signed up at the last minute, but next year we are planning to creat a team -“Team Ace”- and do it right. The weather couldn’t have been more perfect. I hope that yours is as well. The support is definitely a beautiful thing.

    Best wishes & love to you,

    Kathryn

    in reply to: VIDAZA-REACTION QUESTIONS #9211
    Kathryn
    Member

    Oh Dee, I too am sooooo glad you went in. Good for you! I hope you are feeling better.

    You know we are always here for you!

    With love,

    Kathryn

Viewing 15 posts - 31 through 45 (of 246 total)

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