[KP2112]

Hi Andrzej,

I am glad to hear that the doctors had some encouraging advice. I think that is one of the most impostant things to keep things moving forward. I was glad to hear of your plan to ‘go on with Action! Perhaps extend this information to your father will help become less depressed and more hopeful.

Ps. my dad was born in Poland, although I do not know the name of where, offhand.

Kind Regards,
Karen P.

[KP2112]

Hi Neil,

Actually he went yesturday to the Princess Margaret Hospital in Toronto. He got a BMB, lung x-ray and blood tests.

His iron levels are very high. 1500-1600. The dr. kept on telling me he has not had enough transfussions for it to be high. That is one of the reasons I went to see another dr. Is this type of stored iron useable with epogen? Or does the iron have to be ‘fresh’?

Is it possible the RA has transformed to one with blasts? I thought about this but some indication would probably show up in all the blood tests they preform?

I was thinking it could maybe be bone marrow failure but his other counts are just a lower than normal, it is just his hbg.

Thank you
Kind Regards,
Karen P.

[KP2112]

I think your idea is great. I will help out in anyway I can to put this information together. Perhaps a chart form would be useful. Let me know your thoughts…

Kind Regards,
Karen P.

[KP2112]

Thank you Carl. That is awesome. I appreciate it very much!!

Kind Regards,
Karen P.

[KP2112]

Hi Jody,

Thanks for the encouragement. I was just thinking if we had a list, people wouldn’t have to spend so much time searching for what is out there.

Kind Regards,
Karen P.

[KP2112]

Have you talked with your Dad about this, what are his thoughts?

Kind Regards,
Karen

[KP2112]

Suzanne,

You are right that was the wrong link. From what I can see there are 8 types of AML. Please check out this website from the UK it lists them:

http://www.cancerhelp.org.uk/help/default.asp?page=4613

Hope this helps,
Karen P.

[KP2112]

Suzanne,

Please go to this site and it may help you understand the classification systems that are currently in use by the World Health Organization and the French-American-British System.

http://www.clevelandclinicmeded.com/diseasemanagement/hematology/myelo/myelotables.htm

Hope this helps.
Karen

[KP2112]

Hi Barbra,

I have been viewing this message board for a few days and have read a bit about your and Ron’s predicament. I found the following information below, on the web. It may be useful to you.

Side effects of Hydroxyurea

Temporary reduction in the production of blood cells by the bone marrow This can result in anaemia leading to tiredness; an increased risk of bruising or bleeding and an increased risk of infection.

This effect is usually mild. The numbers of cells in your blood can begin to reduce from about seven days after the treatment has been given and usually reach their lowest point at 10-14 days after the chemotherapy. The numbers of blood cells will then increase steadily and will have usually returned to normal within 21-28 days.

The extent to which your blood cells are reduced depends on the dose of chemotherapy you receive and which other chemotherapy drugs, if any, are given in combination. Your doctor can advise you how likely it is that your blood cells will be lowered by the chemotherapy. Your blood will be checked regularly to see how well your bone marrow is working.

If your temperature goes above 38°C (100.5°F); or you develop any unexplained bruising or bleeding; or you suddenly feel unwell, even with a normal temperature, contact your doctor or the hospital straight away.

Raised levels of uric acid in the blood A drug called allopurinol may be given to stop this happening. It may also help to drink plenty of fluids. While you are taking hydroxycarbamide your uric acid levels will be checked regularly by blood tests.

Take Care,
Karen

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