[Lolam]

I can hardly bare the news. I wanted us all to come out alive and survive!! Sooo awfully sad..
I pray that the God of all comfort will be with the family and with us.

[Lolam]

Kathryn. So sorry to hear about your dad. It is so difficult to see our loved ones go. Death truly is an enemy!! I pray that you will have the strength and peace you need. Dads hold a special place in our hearts, the good ones anywise, that just can never be met by anyone else. I hope that “place” is full of memories that will comfort you in the days ahead. We never lose that!

[Lolam]

Your Dad will be in our prayers. It is as hard to stand by the bedside, I am thinking, as it is to be in the bed…We pray that God will be a comfort to both of you and that your dad will recover once again…Hugs, Lola

[Lolam]

We will be adding your dad to our prayers. God can make a way where there is no way. Trust Him to be there for the both of you.
Hugs, Lola

[Lolam]

http://www.caringbridge.org/visit/lolamattfeld

[Lolam]

It’s been a long journey but finally the day arrived! That is good news …

I will be joining you soon, I have been holding my breath..I keep telling myself, “Breathe, breathe”

You have been so much on my mind. Now that your day finally arrived I guess mine will too….

For you, may the next days be up up and away!!!

[Lolam]

I am so happy to hear the news that you are doing so well…That just plain encourages my socks off….nice and warm here anywise.
God Bless

[Lolam]

The National Transplant Assistance Fund will help you with fundraising for monies that the ins. will not pay. 1-800-642-8399
http://www.transplantfund.org
They are very kind and helpful.
I am using them presently

[Lolam]

Your mom has been on my mind every day. I was hoping that somehow the setbacks could be overcome. I am so sorry to hear that the combination of diseases have just ganged up on her. She is still so young, how we had hoped she could have been her so much long. There comes a point when the quality of life has to be considered, no matter how hard it is to face. She has fought long and hard and needs a rest. I am so glad she was able to have peaceful sleep when the decision was made. Who knows? God may give her a longer life than is expected in spite of it all. I hope these days will be the most special days of all. So many good memories are yet to be made and that little 6 year old will never forget Grandma. May God give you all the wisdom you need to know what to say to this little one.
You and your family will be in our prayers. I am embarking on my own journey with SCT after breast cancer..I felt close to your mom in that regard. MDS is disheartening after winning the BC battle.

“He gives strength to the weary and increases the power of the weak. Even youths grow tired and weary, and young men stumble and fall; But those who hope in the LORD will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint.(Isaiah 40:29-31)

[Lolam]

Isn’t it a relief to find a willing matched donor?? I am so happy for you.

Hugs
Lola

[Lolam]

I have found an apt. That is a relief. Now that I know where we will live, I can relax while we wait to leave on the 28th of June.

You all are in my thoughts and prayers as you struggle with MDS and other things. My hat’s off to all you awesome caregivers. How blessed your loved ones are to have you in their lives.

May God bless you,
Lola

[Lolam]

add mine too
Lola Mattfeld
Washington

[Lolam]

I have been wondering about you every day. I hope this match will work out for you and you will be on your way to great results and good health…
Are you actually in the hospital?
I am still waiting for my sister’s results on a match. I was wondering if you ever looked into a cord blood transplant or if your doctors ever mentioned that to you. It seems to have better results and not as troublesome finding a match.
I will also be at the SCCA when the time comes. If my sis is a match my onc. said it would still be probably not until July. I am so scared and so excited at the same time. You will be in our prayers and thoughts. I hope you will be able to post as we are all anxious to hear how it goes.

[Lolam]

I am waiting for a transplant. I wonder if this revlimid would eliminate that need. I surely wish it would. I have secondary MDS and moving steadily to AML . Rev. is not on the market yet so I suppose it would not be an option in my case.

[Lolam]

I, too, feel well and it is hard to believe that as I write my MDS is steadily progressing toward AML. The specialists in Seattle told me that I should go for the SCT as soon as possible. Once it goes to AML you have to get that in remission in order to proceed. The SCT has a percentage chance to be a cure. If you progress to AML they can only delay the disease but it will not last forever. My onc here at home also told me that the treatments for AML are very difficult. So if I thought it was the lesser of two evils (SCT or MDS to AML) I should think again… He told me to get off the fence and start the typing right away. He also said if I felt I had lived a good life and wanted to let it take its course and die in a year it was an option….My family was not for that option to be sure!! I know the transplant sounds horrible but the end result is worth shooting for. I would like to see your dad go for it.. I am waiting for a match just now. It isn’t a sure thing that will happen anywise so you might as well get started. You don’t have to go through with it at the last moment if you don’t want to.
It is just that the treatments for MDS and AML do not last. And they are no joke…. I guess we all will admit we are between a rock and a hard place, as my dad always would say.
God bless you as you try to make sense of it all. I know He will guide and give you peace if you ask for it!

[Author]

Posts